Post Tubal Ligation Syndrome.
Posted by: retardedrugrat on: June 14, 2006
Warning: This post is long. It’s also graphic in parts, but it’s something that’s VERY close to my heart, and the word needs to be spread. Ladies, read this, guys, you read it too. One day you may need this information.
On the 9th of November 2001, I woke up feeling groggy, spaced out, and in intense pain. The time was 10.30am. I’d just had a Caesarean Section to deliver my third (and last) child – and I’d also had Tubal Ligation.
Myself and my (ex) partner discussed me having it done, because with two young children and another one on the way we felt that the family was complete. Birth control pills didn’t really suit me, I’d been changed from one brand to another, to another, to another. But the side effects kept on coming. So, Tubal Ligation seemed to be the ideal option. I discussed it with my pregnancy consultant at the hospital who said it could be done when I had my baby, because I was already having a Caesarean Section.
I had no complications from the surgery, and was allowed home 4 days after. Two months later I had my first post pregnancy period, and it put me on my back! I bled very heavily and was also losing clots. Instead of a normal 3 – 5 day cycle, I bled constantly for 14 days. Worried about this, I went to my Doctor, who told me it was normal for a post Pregnancy period to be like this. Feeling rather stupid I went home and thought no more of it. After all, the Doctor knows best right?
For the next year I waited for my periods to settle down. They never did – and other problems had started showing themselves. Two weeks before my period was due, I started having sharp stabbing pains in my Abdomen, I had terrible mood swings, I was tired and cranky all the time, I had no energy, I was depressed, I had difficulty concentrating on things, I had migraines on a regular basis, and I was having trouble sleeping on a night just to name but a few problems. Never in my wildest dreams did I think this could be connected to my Tubal Ligation.
It was only when I went looking for information on the internet that I found out what these symptoms were. And more to the point, that it was a condition that had been given a name. Post Tubal Ligation Syndrome.
Post Tubal Ligation Syndrome, or PTLS for short, is an iatrogenesis condition, meaning “Doctor caused” or “Doctor produced.” Many women suffer after having a Tubal Ligation. A list of symptoms of PTLS are as follows:
1. Eptopic pregnancy or pregnancy (well known risk of tubals)
1a.Hot flashes, flushes, night sweats and/or cold flashes, clammy feeling, chills
2. Bouts of rapid heart beat
3. Irritability
4. Mood swings, sudden tears
5. Trouble sleeping through the night (with or without night sweats)
6. Irregular periods; shorter, lighter periods; heavier periods, flooding; phantom periods, shorter cycles, longer cycles
7. Loss of libido
8. Dry vagina
8a.Itchy vagina-at times raw like, can radiate from whole area, with absence of yeast infections.
8b.Colour change in vaginal area. (colour gets darker – purple/black)
9. Crashing fatigue
10.Anxiety, feeling ill at ease
11.Feelings of dread, apprehension, doom
12.Difficulty concentrating, disorientation, mental confusion
13.Disturbing memory lapses
14.Incontinence, especially upon sneezing, laughing; urge incontinence
14a.Prolapse of uterus due to rapid decreases in estrogen levels.
15.Itchy, crawly skin
16.Aching, sore joints, muscles and tendons
17.Increased tension in muscles
18.Breast tenderness
18a. Decrease in breast mass
19.Headache change: increase or decrease
20.Gastrointestinal distress, indigestion, flatulence, gas pain, nausea
21.Sudden bouts of bloat
22.Depression
23.Exacerbation of existing conditions
24.Increase in allergies
25.Weight gain
26.Hair loss or thinning, head, pubic, or whole body; increase in facial hair
27.Dizziness, light-headedness, episodes of loss of balance
28.Changes in body odour
29.Electric “shock” or “stabbing” sensation under the skin.
30.Tingling in the extremities
31.Gum problems, increased bleeding
32.Burning tongue, burning roof of mouth, bad taste in mouth, change in breath odour
33.Osteoporosis (after several years)
34.Changes in fingernails: softer, crack or break easier.
The symptoms bolded are what I suffer with. They can show up at any time. There are days where I feel so ill, I stay in bed all day. Jeff feels helpless because he knows there’s nothing he can do to help me or ease the pain. Not surprisingly, these symptoms can be eradicated by having a Tubal Ligation Reversal.
So, you spend 3 years saving up the money to have the reversal (it’s not available on the NHS, or on Healthcare here in Canada, it has to be done privately), and then go to your Doctor, tell him you have the money to have your tubal reversed, and you want it reversing because you suffer from PTLS. Should be simple right? It’s not. Many Doctors simply do not believe that PTLS actually exists. I know of women who have suffered the same way that I am, only to be told by their Doctors that it’s “all in their head.”
This has to change. Doctors are trained in their profession to improve the quality of life for many people. Yet if you click on the link above the list of Symptoms (click on the word iatrogenesis) there is a full explanation for why women aren’t told of the possible side effects. I also found out afterwards, that before undergoing a Tubal Ligation, a woman has to be offered Counselling. Neither myself or anyone I know who’s had a Tubal Ligation were offered counselling.
Having a Tubal Ligation was the biggest mistake of my life. I would never have gone through with it had I known about the possible side effects, indeed those I am suffering from now. Had I known that I was eligible for counselling, I would also have taken them up on that offer. Tubal Ligation is almost always performed under a general anaesthetic. To do this, everyone is legally obliged to sign a consent form to say that if anything goes wrong as a result of General Anaesthetic, the Hospital or Clinic performing the surgery cannot be held liable. Iin the case of Tubal Ligation, there’s a clause on that same form, that states that the Hospital or Clinic cannot be held responsble for failed Tubal Ligation, because it’s not negligence or surgery incompetence on the part of the surgeon.
I am having my Tubal Ligation reversed. I am determined I will do whatever it takes to have it reversed. Why should my quality of life be compromised so that Doctors and Surgeons can continue to line their pockets, take expensive Vacations and go play Golf with their Buddies at the Country Club? If I find a Doctor that’s not willing to listen to me, even in the face of all the evidence I have – I will keep looking. I WILL find one willing to listen to me. And Ladies, if you’re considering having a Tubal Ligation, here’s a little advice. DON’T! You will regret it for the rest of your life.
Update: If you’re interested in finding a clinic that may help you, read this post. It’s an updated post I’ve done with the name and a link to a clinic in North Carolina that specialize in Tubal reversals.
Update two – I have now started a Facebook group called Post Tubal Ligation Awareness in an effort to get the word out to more women before they make a big mistake. However, I am also interested in getting as many women as possible who suffer from PTLS to join. You don’t have to be on my friend’s list or anything like that, the group is an open one. It can be found by clicking the link at Post Tubal Ligation Awareness Group.
Ciao.
198 Responses to "Post Tubal Ligation Syndrome."
June 15, 2006 at 1:23 pm
One thing to keep in mind is that a number of those symptoms can be attributed to *any* surgery. Surgery should be regarded as a last resort because you are deliberatly bypassing our best defense against bacteria – our skin. Not surprisingly, a building whose tenants are comprised mainly of sick people is not a good place to have your skin cut open. It’s also why they pump you full of antibiotics before and after. Doctors (and underwriters) are aware of this which is why they have all that lovely fine print on the form you signed.
Mind you, I thought that the pre-counselling was mandatory – when a friend of mine had his vasectomy it was. I’d be interested in whether or not your doctor of the time would be guilty of negligence for not making sure you had it. “Informed Consent” is the legal issue here.
Anyway, I hope you feel better soon (short term) and find a resolution for the long term.
- Todd
June 15, 2006 at 6:53 pm
Geez Louise, that’s simply awful. I’m so sorry for all the suffering you go through.
Thank you for getting the message out there!
June 15, 2006 at 8:19 pm
Hi Todd,
I agree that a number of those symptoms can be attributed to any surgery, but bearing in mind, I had C. Sections with both of my boys, and I had no problems after the birth of my eldest boy. The same with my youngest, no complications from the actual Caesarean itself.
The symptoms started showing themselves to me 2 months after I had by Tubal Ligation done, and have since appeared gradually over time. I don’t see that this would be from the Caesarean, my body has totally healed from those.
Jeff’s Mom also had many problems after she had Tubal Ligation, problems that stemmed from the Tubal surgery, and even today 33 years down the road, she still suffers to a certain extent.
Maryrose,
Thankyou for your comment. I agree that this message needs to be put out there. So many women go through Tubal Ligation thinking it’s a Miracle solution to preventing pregnancy and childbirth, but it’s not. The Doctors don’t tell you that you will quite possibly need more surgery to rectify problems caused by the first one. I do have to say though, not every woman suffers from Tubal Ligation, but the odds of suffering PTS are stacked. I personally find it dusgusting that Doctors won’t admit that this is a condition and that it does exist. Imagine going through all that pain to be told by your Doctor that it’s all in your head. And here’s me thinking that Doctors were supposed to help improve the quality of life for us all.
May 11, 2009 at 5:33 pm
wow! This is so crazy!
I am a mother of 4 healthy children.
I had a tubal ligation in2001 and since I have been suffering from many of the symptoms above, plus I have had several surgeries in the last 4 years with my females for the same thing and yet I can not get an answer as to why.
No doctor around here will confirm that post tubal ligation syndrome is actually real and when I try to discuss it with doctors, they blow me off.
I need help with this.
Any suggestions?
Concerned mother
May 12, 2009 at 2:37 pm
“OMG” Me too i had mine done back in Sept 2001, I have alot of these symtoms . I would always complain to my doc and they would always put me on birth control (YAZ). Honsetly it never helped. I would always tell my mother and my love ones i know i feel this way because of the tubal . Go figure i lanned on this and was reading . I finally do not feel alone. What to do now ,i’m so tired of feeling like this .
July 2, 2009 at 7:25 pm
I was 22 when I had my tubal. 7 years later, a divorce and many jobs, I feel like im loosing my mind. I already had bad cramps so now its even worse, I have more than 50% of ptls (omg I thought I was nuts). We all need to do something to stop this I was way to young to understand n no I had no info given to me dr just askd u sure I said if I want more I can get reversed n it was done. Dr only care bout $. More prob u have more $. Sorry so rambeled but so much to express at once but don’t no how to say it all. My mom had a tl no prob I had 1 n omg I just want to cut it out my self!
June 15, 2006 at 9:18 pm
Thanks for sharing your story. I came here through CrazyQueen site, saw where you got mad and moved from blogger too and wanted to say Hi.
After re-reading this I think I want to share this with my SIL!
Dawn
June 15, 2006 at 10:25 pm
Thanks for stopping by dawn. It’s always nice to see new faces around here. Please do share this post. Women have the right to be fully informed before having a Doctor poke about with their reproductive system.
June 30, 2006 at 10:28 am
I had a tubal over a year ago and have experianced nothing but pain and suffering ever since. Intercourse is extremely painful and I ALWAYS bleed afterwards. I have very heavy periods, one so bad I couldn’t stand without blood running down my legs after I would change”things” about every ten minutes. Most of the symtoms listed I am experiancing, yet every doctor I’ve seen says I’m fine, even after vaginals, vaginal ultrasounds and whatever else they decide to throw at me. They make me feel like it’s all in my head. Trust me, my boyfriend can tell them differently. Although he is very supportive I know he gets tired of me bleeding on virtually everything, and he constantly worries about hurting me. For over a year it was constant bleeding, although I still bleed with intersourse, it has dwindled , I now stop the next day and have yet to have my period since april. I need help and don’t know where to turn. Yesterday I saw a new doctor for a pregnancy test and also to discuss my “problems”. She refused to talk about it because she said there is no medical evidance supporting these facts. I’m tired.(also not pregnant) If anyone has any advice please help me.
June 23, 2009 at 7:35 pm
Tammy,
I have the same problems and my Dr. told me about NovaSure, a procedure that burns the Uterine lining and can virtually decrease your period to nothing. It is actually called an Ablation. Look into that before having a reversal, INS will pay for that.
Good Luck
June 30, 2006 at 2:52 pm
Tammy, the only thing you can do is keep searching for a Doctor who actually believes that this is an actual condition. It might be an idea to do a google search and see if there are any doctors in your particular area who specialize in this.
If not, you may have to go to a private Clinic if you can afford it.
I’m sorry for your suffering. I don’t bleed after intercourse but I know all too well the pain you’re suffering. Hang in there and keep searching for a Doctor! The only way we can ease the pain is by perseverence and patience in finding that Doctor.
Good luck! Keep me posted on how you get on.
July 4, 2006 at 11:55 am
Thankyou, even though the medical “experts” don’t seem to listen, it’s wonderful to know that I’m not alone out here. And, I will keep searching until I find someone that will listen.
July 7, 2006 at 10:14 am
Thanks for the info. I, too, suffer from PTLS. I didn’t even know it existed until I accidentally came across some info on the Web. I had a tubal almost four years ago and I suffer from about 20 of the symptoms listed. My doc said it was “depression” and put me on Prozac. He just keeps uping the doseage because I am not getting any relief. I have also been suicidal at times. I just feel like the world is against me. I just can’t take it sometimes! I thank you for this website and I am going to follow up with my doc TODAY to demand that something be done. I deserve a happy life and I used to have one! I thought a tubal would increase my happiness by not having to worry about pregnancy (I have three children already), but it is destroying my life!
August 1, 2006 at 3:52 pm
I agree with you problems, I have recently gotten divorced and have not been myself for a long time. I too have had many or all of the syptoms listed. I can’t take it anymore. I had my TL 2 years ago and have been miserably since. I was like clock work before and now I may bleed everyother day. The depression and anxiety that I have felt is overwelming. I have thought about telling the doctor I want a reversal so i can have another baby just to get it done. I am only 25 and do not wish to deal with this much longer. Good Luck to you and all that are dealing with this.
August 9, 2006 at 6:14 am
I just wanted to thank you for putting your experiences on the web. I, too, had a tubal ligation four years ago and have been experiencing problems ever since… I am now bleeding upwards of 20 days per month. That is accompanied by the hot flashes, tender breasts, exhaustion, etc. that so many women seem to suffer from after having a TL.
My doctors have put me on 4 different types of birth control pills (I had my tubes tied to STOP taking birth control pills) with no change in my cycles. I have now been put on Cymbalta (an anti-depressant) which just makes me hazy all the time, and not supressing the pain of menstruation or my breast pain. My husband and I are at our wits end, as we BOTH carry insurance, but neither company will help us. All I want is to feel better!
I have printed out this page, to take it to my doctor’s office today. I remain hopeful that someone (hopefully, my doctor) will take this seriously, and that I may soon feel back to normal.
August 14, 2006 at 12:07 pm
i just wanted to say thank you for this information for the longest time i thought the problems i had were in my head bcause the so called proffesional doctor told me that it was and that it was caused all due to stress. (ha right) when i had started similar symptoms after having my tubes tied, i’m being treated for infection after infection of that general region for 2 yrs and nothing has seemed to get rid of this infection. i have two very health boys and the reason i did it was through severe pressure of family and boyfriend at the time and i really regret it because before this procedure i had no depression i wasn’t being tried on a million and one pills until this proceedure as well as i have never felt so sick in my life.. it has gotten to the point that work became unbearable and my now familly suffers with me being in bed all the time i try so hard to put this behind me but it only seems to get worse i was not given any counseling at the time of the proceedure and i was only 19 at the time when this was done, so i really had no idea what i was getting myself into but reading this page has given me hope that maybe reversing my tubes might give me back my life i’ve tried everything else and no results so in short what is one more thing to go through that could actually help and end this b.s. i really appreciate your bravery and putting yourself and your personal situation in an open battlefield for all that has no voice but feels the same way. thank you and lets hope this article will help those before it’s to late.
August 14, 2006 at 12:32 pm
i know i just sent a comment but i read more in depth, ya i tend to speed read sorry, but depression seems the thing doc’s want to call this and i also have been suicidal since the procedure but lets focus on finding a doctor on sticking together and researching all of this and make our voices heard if it wasn’t the person who wrote this many of us me included would still felt alone and thinking it was in our heads, we might not be professionals but we know our bodies and sorry not every1 follows by a med book. if i know any information to further prove that this does exsist i will update my comment if anyone just wants to talk or brainstorm i always have an ear to listen my e-mail address is sharpclawed_kitten170485@hotail.com, i will look in my region of new brunswick canada of any doctors that are willing to help because i want to end this suffering once and for all, why suffer if we don’t have to. honestly they should tell you ALL the side effects not just the surgery part of it. so take care all and i hope we will end this fight with a winning laugh instead of more pain and sorrow this stupid procedure caused.
monika
15 | Retarded Rugrat » Post Tubal Ligation Update.
August 15, 2006 at 9:30 pm
[...] Back in June I wrote this post on Post Tubal Ligation Syndrome. The response to this post took me totally by surprise. I received many comments from women everywhere thanking me for posting about my experiences and giving them hope that they weren’t alone in suffering this. [...]
August 19, 2006 at 1:23 am
It was nice to read something like this online. I too had my tubes done about a year ago after I had my third child (mind you with all three I was on birth control!!) I have never had many problems when it came to the period pain and symptoms etc… though I have to tell you that after having my tubes done I was like you… all these new things started to pop up that really made no sense. i have a very high pain tolerance have lived almost all my life with extreme back and knee pain and have to take meds for those…. but now after my tubal I was like you…I honestly felt like i was going into active labor all over again!!!! My flow would be no flow… it would be gushing!!! I have never gone through so many sanitary products!!! Needless to say… all my doc has to say is keep taking the Vicodin and 800ml Motrin to manage the pain… I’m so tired of taking all this medication! I too have been looking and talking with other doctors around here, and just hope that there would be more that they can offer then “just keep taking your pain meds”…. Thank you for posting your story I look forward to reading more as more people post…
August 26, 2006 at 6:22 pm
I’m a 35 year-old female and suffer from at least 50% of these symptoms at times. I have NOT had my tubes tied.
Over the years I have been on various forms of Birth control… The Pill, IUDs (3 different kinds) and depo provera. For the past 5 years I have been using the Rythm method exclusively. (THAT is why i have a THIRD child!) 
Every form of birth control caused HUGE changes in my cycle. Birth control pills supress the body’s normal homone cycle. you don’t ovulate, so the body doesn’t produce the same hormones on the 14th day of it’s cycle (hello mood swings and stabbing abdominal pain!). The pill is prescribed by many ob/gyns to reduce the issues many women have with PMS (again, mood swings, bloating and irritability).
I firmly believe that symtoms 2-13, 18, 20-21, 25, 27 and 28 are the difference between a body regulated by BCPs and a normal-functioning cycle. face it, hormones are WICKED! when allowed to do what they are supposed to do, they really do turn us into the “weaker sex”.
symtoms 1a, 14, 14a, 18a, 26, 33 and 34 could be caused by simply aging and having several pregnancies. IT STINKS!
Symptoms 19 and 23 are too vague to have been listed. imo. what does “Exacerbation of existing conditions” mean? AND how can an increase OR decrease of headaches accurately be quantified?
I firmly believe that the TL is NOT the only common denominator in this “syndrome”. i believe the switch from synthetic-hormone-driven-cycle vs. normal cycle might’ve been too much.
I also contend that snipping the tubes that act as a delivery chute for eggs to the uterus (to be fertilized) can NOT cause your fingernails to crack or change the color of your vagina!
i also think… based on a few of the symptoms that you should have your thyroid checked. hair-loss, fingernails, weight gain, memory lapses, difficulty concentrating, depression, fatigue, loss of libido and a dry vagina… among others are red flags for a hypo-thyroid condition.
as an experiment… i’d go back on the pill for a few months. see if some of your symptoms improve. just a thought.
respectfully and with much concern for women’s health issues,
Debbie
August 27, 2006 at 12:17 am
Thanks for your comment Debbie, however, I hadn’t been on the pill for 4 years before having my Tubal Ligation, so I don’t think for a minute that it could be the switch from synthetic to a natural cycle that caused this.
Also, I didn’t say that I suffer from ALL of the symptoms on this list. I suffer from approximately half of them – all of which showed up only after my TL.
I have also been in contact with women who have suffered from some of these symptoms, and had them ALL disappear after having had their tubal reversed.
Tubal Ligations play absolute havoc with your reproductive system, hence also with your hormones, and yes, whilst I’ve never suffered from symptoms such as dry vagina or cracked fingernails, I do suffer from some of the more serious ones. What those are I shall leave to you to figure out, as discussing what I suffer each month would gross out some of my more regular readers.
I have also had many many tests done by Doctors, all to no avail. Of course, there are no tests to actually diagnose PTLS, so of course nothing showed up. Apparently, there’s nothing wrong with my thyroid, or my hormone levels or my reproductive system, and so “it’s all in my head.”
I’m glad I found a clinic that does research on PTLS, and I’m glad they take us seriously. In a world where medical care is more about money than actually curing patients, a clinic like this is a breath of Fresh Air.
August 28, 2006 at 10:35 am
hey everyone i check this site once in a blue moon just to see updates you said you found a clinc that does research here in new brunswick there isn’t anything i talked to my doc and he put me on new anti-depressents and now muscle relaxents geees… we showed him this site and he said it didn’t come from a medical doctor hello we are at least knowledgable in our own bodies bet eh what do males know they don’t go through this and bcp really doesn’t work at all been there tried that for a yr now so what else is there to do when you have had every test under the moon and they almost all come back negative like the hyper thyroidism… been there did that.. i’m now saving money to get my tubes undone rather have a big family and be happy a bit poor lol then this i’d do anything to be normal again and i’m sure many of us would do the same just to get some stability over our bodies and live a life without this headache sure we had the choice to do it but we didn’t know something this bad could come out of it..
September 3, 2006 at 7:15 pm
I am so happy to know what is wrong with me after all this time, i had my tubes tied 2 years ago and just realized after searching thinking it was depression, add, fibromyalgia, or thyroid and being told nothing was wrong with me. well there has to be something when you bleed after intercourse and have periods twice a month. I feel like i never get a break and it interferes with my relationship with my S.O. He never knows when i’m going to snap on him, cry, or be in a good mood. Always feeling tired, and nothing helps, falling asleep at work almost, migraines, it’s miserable and i want my life back, if anyone know of any insurance that will cover reversals please inform me at babygirlnya2001@yahoo.com. i’m am researching as of now i will get back if i find something
Good Luck and God Bless, i guess this is punishment for being out of order with God. Taking control of our lives when he is the one in control. Stopping the natural process of life.
September 12, 2006 at 1:32 am
i was sterilized in 2000, and since about the may of 2001 i’ve been in a similiar situation, i came to these websites about the syndrome via endometriois websites. i told my doctor two years ago that all my period problems stared when i was sterilized but it was met with a sniff and a “oh i dont think so its one of the simplest procedures going” so no referal, i’ve been palmed off with; endometriosis, early menopause, its all in my mind. there are days when the pain in my abdomen is so bad that i can’t stand up. the bleeding starts a couple of days later and varies from faint with loads of cramps(like my womb is trying to expel something and can’t) to almost like someone turned on a tap. its fair to say i’m not going to get treatment, there’s just not a doctor here in the uk who will back up what i’m saying. i’m going to try again armed with some of the information i printed off the net and see if my female GP will help but i’m not hopeful. i’ll let u know what happens next but as i said, there’s not a great deal of help for women like us who where lied to.
September 26, 2006 at 9:36 am
Wow. After suffering for over 2 years with extremely heavy, longer than normal periods (which I never had before my TL) and some WICKED PMS, I thought today to do a google search and see if there was some correlation between a TL and abnormal periods. Bingo. I’d never heard of PTLS before, but I am appalled that women aren’t warned about it before having a TL performed. Even if doctors don’t believe themselves that it is a valid condition, we have a right to at least know it’s a possiblility. Mind you, I wasn’t even counselled or told ANYTHING prior to my TL. After spending an entire pregnancy (with twins) by myself (hubby decided twins was too much for him to handle) and just prior to a scheduled C-section (which I was very nervous about), my OB popped her head around the curtain and said, “Oh….while I’m in there, should I tie your tubes?” That was it. That was the extent of the conversation regarding consequences, etc. ARGH.
Thank you to everyone who posted here and validated what I’ve been feeling since having my TL 2 1/w years ago!
April 25, 2007 at 12:58 pm
I had my tubal two years ago and I have had nothing but problems. I was having a c-cestion, which happened to be my third one, and my husband and I decided that I should hae my tubes tied. I have talked to my doctor and she couldn’t fine nay medical reason as to why I was having problems. I am going back to see her this week, and I am ging to ask her about this! Thank you so much for getting this information out!!
May 8, 2007 at 10:53 am
wow, i had a tubal almost a month ago and have had many of the same syptoms listed, but have had NO period yet. How long does it take for menstruation to return? Before reading this I almost thought I could be pregnant, which after already having three kids plus a step is a big NO NO, and the whole reason for a tubal in the first place! anyhow, I am glad to know that I am not alone in this and that I havent lost my mind, I will be seeing my doc tomorrow for a follow up and will see if nything can be done to counteract some of these sypmtoms. THANKS!!!
May 12, 2007 at 4:49 pm
Hey. I am so glad to see this on here. I had my TL in July of 2006 after my son was born. I had him at The University of Tenn Hospital, which is of course a teaching hospital, and after a horrendus birthing process and with 15 doctors and students in the room, I was approached with a concent form for a new type of clamping and tying process for the TL. They said they only needed ONE more person to complete their study and it was supposed to reduce post-op pain. I don’t know how much pain I would have been in but all I can say is OWWWWWW! My first post baby period was bad and of course they said “Its Normal” but they have pretty much gotten progressively worse. I have had cysts in the past and endo but this just seems worse. I have been attributing it to that study that I AGREED to participate in and kicking myself. Then all of a sudden no period (just the pain of course!) since 03-02-07!!! I had been taking pregnancy tests but they were negative. Finally yesterday when the pain was so bad I couldnt even stand up straight, I went to the ER. I was there for 12 hours!!!!!! I had 15 vials of blood drawn, 2 ultrasounds, a CT scan (with contast and barium) a pelvic exam, urine test and probably some things I forgot! I had IV fluids, pain medicine and an anti-biotic shot given to me. When the doctor finally came in (and I must say he was at least nice to me throught all of this) he said he thought I had a bladder infection and that my left ovary was significantly higher than my right. Other than that he was clueless as to the cause of the missed period and extreme pain. They couldnt find my left ovary on the ultrasounds so they souldnt say how it actually looked. He said that it may be twisted or something. Thats all I got the whole time was a bunch of “maybe this” and “could be” that or “well its not this or that”. I was discharged with 2 anti-biotics, pain medicine and a diagnosis of Pelvic Pain and a Urinary Tract Infection. They also told me to follow up with my OBGYN today. I called the OB this morning and they cant get me in to see the Dr. untill 05-24-07. I am sooooo frustrated. I decided to type in some of my symptoms and was given a link here. It was so comforting to read that I called my mom and told her that I just might not be crazy!(LOL) I must say I am scared to mention this to my Dr. after reading how some of you were dismissed by your Dr’s. If anyone has any additional advice on how to suggest this to the Dr. or any other info PLEASE contact me at Dymond1997@aol.com and thank you so much to the woman who started this. I see you have given a lot of us a source and outlet for this whole crappy ordeal!
May 15, 2007 at 1:44 am
i had a tubal ligation 12 years ago, other than painful periods, i suffer none of these symptoms, it all depends on how prepared you were for the TL…be positive please.
May 29, 2007 at 7:31 pm
On feb. 12, 1991 i had a tubal which i did not want my childrens father told me i had to or he would really hurt me or worse. the morning after i remeber wakinkg up telling my mom I didn’t want it and she said it was to late. I did read your story and i have more than half of these systems and i really hurt every month. I have been trying to find a way to have it revered if nothing esle i would be happy not to have that kind of pain. i am remarried now and there are somtimes he can’t even touch me because i am in pain. I really hate that time of the month or when i ovulate my doctor says my eggs do not have any where to go so i will be in pain unless i have reversed.
May 30, 2007 at 1:51 pm
I am sorry to hear that it was forced on you Sharon H. I was in a very bad situation myself for 9 years. That is actually one of the reasons I had my Tubal. I had been pregnant 9 times previously and had only 1 child. (after I left him) The Dr’s say that part of my problem is pain from scar tissue and endo. BUT LISTEN LADIES!!!!!!!!!!!!!! I ran this PTLS thing past my new OBGYN and he AGREES with it!!!!!!!!!!!!!!!!!!!!!!!! I was very surprised! He is in his 60’s so I figured someone from the old school of medicine would COMPLETELY blow me off! To my surprise he says its a true thing. He however disagrees with the reversal being the answer. He said once the tubes are streched to tie or clamped they can never go back to the way they were. He said that the only answer to this is a Historectomy. He dosent really want to that right now though with me only being 28. He put me on the Nuvaring to try to help with the symptoms. I am frustrated with that because I have tried birth control pills before and they didnt help. I must say though, at least he is VALIDATING that the condition exists!!!!!!!!!!!!!!!
June 15, 2007 at 5:38 pm
I just found out about one month ago that the TL I had in 1999 has been the root cause of many of my problems over the years. I have six children, I left my ex-husband, their father 10 years ago. 3years after leaving I decided that tying my tubes would be best for me. I was a struggling single mom trying to raise six children with absolutely no help from their father. I didn’t want to be raising #7 by myself. I did not want the pill, or any shots, my mother got pregnant with my baby sister on the iud so I thought tying my tubes was the best option for me. I was not told anything negative about having a Tubal. Right after surgery I went home and was told to stay home from work for about 2 days then I could go back. When I tell you I was in the worst pain ever, It was unreal. My belly button hurt so bad, I was having constant sharp stabbing pains for days, I was popping percacets(narcardic) like candy. Over the years I have had major migrans, chronic fatigue, depression, dizziness, anxiety, memory loss, since the surgery I have suffered from all but about 2 or 3 of the symptoms of PTLS. Every month since the surgery I suffer from excruciating pains in my overies to were it stops me in my tracks and I can’t move a muscle. I have had pain so bad I can’t even explain it during intercourse to where I could not move and thought while going through it that the ambulance needed to be called. I literally thought I could be dying. I have gone to plenty of DR.’s over the years as well as herbalist. I have so many different herbs and vitamins trying to find something to heal me or get me back to normal. I went to one doctor for my migrans I was given ct scans, etc. nothing was found, he proscribed me medicine for seizures, said that it would help my constant migrains, I was given depression medication. I didn’t take any of it, it was clear to me that they had no idea what was wrong with me but prescribed me something to pacifie me. This has been going on for 10 years. I would take the vitamins and herbs different mixtures at different times hoping that I would feel better. About one month ago I noticed that things had gotten really bad for me. I was unable to get out of bed. No matter how much sleep I got I was so tired. I forced myself to to to work or run inportant errands after that I would be back in bed. I also had not had my cycle in about 4-5 wks which concerned me. I have never missed a cycle since the age of 12 unless I was pregnant. I took a pregnancy test from the drug store it was negative. I was so worried called my mother and asked her when did she go through menopause, she said about age 48-49, I am 39. I immediately called an herbalist and asked if she could tell by iridology (reading of the eye’s) if I was going through menopause, she stated yes. I went to her office the next afternoon, after completion she advised me that my glands were out of wack a few other thing as well and that I was in menapause. I explained to her that I thought I might be pregnant and took a test and it was neg. and that I had my tubes tied. She told me that tieing the tubes can throw a woman into early menopause. Her exact statement to me was “If it were me in your shoe’s I would have my tubal reversed”. She said that the way we (women) were created, our bodies are supposed to go through certain cycles. Our overies are suppose to do something, as well as our eggs and so forth, when you have a tubal it stops the natural cycle that our bodies are supposed to go through and literally knocks everything out of wack. The body doesn’t know what to do anymore. This is about the 11th week since I have not had my cycle. I still get the excruciating pains when my cycle should be comming on but no cycle. I am so very upset that I was not told about the possible side affects that could last my whole life. Had I known any of this I would NEVER have had a tubal. I feel bad alot of the time but I keep it to myself and alot of time put on a front. I just want to feel good again. After seeing the herbalist I went straight home and got on the computer and googled PTLS. I was shocked ,amazed, upset, enlightened. I do feel better though knowing what is wrong with me. For so long I have known that something was wrong but didn’t know what. I have been researching Tubal Reversals. I am hoping that in the near future I can have it done. I thank the person that started this site as well as the many other sites I have visited similar to this. You are educating alot of us women. I really would like for this to be told to all women so we know and can make informed decisions. This information was available to me 10yrs ago, at that time I was not into computers so didn’t research. This information really needs to be presented to any and every woman considering this procedure. This procedure brings life long devestation to many women. Again thank you for educating me as well as validating my 10yr situation.
June 24, 2007 at 6:41 pm
I had my TL done 10 yrs ago. I have had alot of these symptoms as well. I also would like to find a dr. that would do a tubal ligation reversal. But financially i cannot afford it at the moment. I had clamps put on my tubes. But whats strange is ive had pregnancy symptoms now for a couple months. I took 3 home preg. tests and they came back neg. then i went to the dr. and their test came back positive. So they ordered blood work and it came back neg. as well. So i was very confused. Im still having symptoms of alot of the PTLS on top of preg. symptoms. Any advice as to what i am suppose to believe whether im preg. or not preg. or its all PTLS.
June 25, 2007 at 2:54 pm
Melissa,
If I were you I would ask for an ultrasound ASAP! I have a friend who had her tubes clamped (mine were tied) and one of her clamps came undone and she had a tubal pregnancy. If the US comes back negative ask for a CT scan. I know this can get expensive but there can be both serious and bening resons to be giving out the hormones to cause a pos test result. Good Luck!!!!
Kristy F.
August 1, 2007 at 1:46 pm
Hello,
I came across this website because Im going to try to get a tubal reversal done because after 10 years and a divorce later I am remarried to a man who has no children even though I have 4 allready I never wanted to get the TL in the first place, my x said he didnt want anymore children and that I needed to do it because he didnt have medical insurance and I did. I remember waking up the day of my surgery not wanting to do it and calling my x husband begging him to rethink his decission. I thought I would be with him forever. Then a few months after having my son and the TL. I to started getting symptoms that I had never had before. I went to the doctor many times and told him that I thought it was due to the TL. He to said there was noway this could be my problem. After several misdiagnosis any where from ovarian cancer to Irritated bowl syndrom. No answers where ever found. Soon my symptoms of anxiety increased and I began having panic attacks and suicidal thoughts, I was put on a anti depressant and they overdosed me which caused me to attempt suicide and found myself in a mental hospital for a week to regulate the meds. I never recovered from any symptoms and therefor caused probelms in my marriage and is the main reason for the divorce. Thanks for putting this information on the web I cant believe it has taken me almost 10 years to validate what I have felt all along. I feel we need to stand together and stand up to all medical personel and realize we know our bodies better than anyone. I wished I would of faught more instead of excepting my fate and living this way for so long. I go and see the tubal reversal doctor August 13th I just hope that there is enought tubes left to repair and give my husband and I the baby that we want. Good luck to all of you that are suffering the same as I. I will pray for all of you. God Bless
33 | Retarded Rugrat
August 5, 2007 at 10:20 am
[...] Retarded Rugrat {August 05, 2007} Wow – who knew this information was so hard to find? Back on the 14th of June LAST year (2006), I did a post about Post Tubal Ligation Syndrome [...]
August 11, 2007 at 4:16 pm
I think that the reason it has taken most so long to find out about PTLS is because when we all started having the symptoms and we went to our doctors most of us heard the samething. “It cant be the tubal.” Like I said I told my doctor that I thought it was because of the tubal and I said the same thing to other doctors and they all told me I was wrong. I dont think that most people like me ever thought to look up anything about the tubal instead we were focusing on the diagnosis that our doctors were giving us. Like when I was told I had overian cancer, man I tell you what, that was a kicker. Then to find out later that they misdiagnosed me and I just had ITBS(irritable bowel). So one minute I went from ok I could die to oh this pain is because I cant poop. Like I said before, we just need to stand up to the doctors and if we dont hear what we want then we must search to find someone that can hear us and help.
October 15, 2007 at 7:14 am
I am realizing that my TL was probably a big mistake. I have 5 children and got my tubal done immediately after giving birth to the last one. My periods have been heavier and more painful. I get pain in my abdomen when I ovulate. I have mood swings now which I never used to have. Depression was never something that I went through but now every month I am not myself and don’t feel in control of my emotions. Basically I get nasty PMS-type symptoms that I never experienced before the TL. I don’t know if I would have done it if I knew all the PTLS facts beforehand. They don’t say anything about these type of side-effects at the hospital. I was told specifically that it would not affect my hormones or emotions, libido, etc. but they were wrong!
November 7, 2007 at 4:08 pm
At age 36 with my fifth c-section I had a tubal ligation. I began to experience pre-menopausal symptoms along with a baby-blues feeling that never went away . I began to feel weak with achy joints and tired legs. My doctor tried depression pills with me that only made me walk around in a fog, feeling no joy or saddness and with a very dry mouth along with sleeplessness so I quit taking them. My joint pain became worse where it affected my ability to take walks with any amount of endurance. After a few years of heavy bleeding which increased into being anemic I had a hysterectomy. Now that I am 50 I am plagued with unexplainable symptoms of tingling sensations, tired limbs, weak muscles and numb fingers. Doctors do not know the cause and have done numerous tests. All attribute them to depression. If I could go back I would not have had a tubal ligation. I discourage anyone from going that route for birth control.
37 | Tubal Ligation Reversal Videos. « Retarded Rugrat
November 8, 2007 at 8:45 pm
[...] suffer from a condition called PTLS also known as Post Tubal Ligation Syndrome. I did posts on this here, here, and even [...]
November 15, 2007 at 12:54 pm
Hello, I have been having so many of these symptoms since I have had my tubes tied. I have a Dr. appt. tomorrow I am going to bring this up because I have been trying to figure out what is wrong with me for the last year since I had my tubes tied. Thanks for having a site like this
November 15, 2007 at 6:38 pm
Hi I just read your article and it made me cry for I know exactly what your going through I had my tubes clamped last august and since then I’m not the same person, my doctor tells me that the not being able to sleep is b/c I’m stressed out and I should go for a walk. I m 26 with two young children and I’m so depressed and sad most of the time I can’t even enjoy them. I was pretty much forced into having my tubes clamped aft the birth of my son he was a c-section and the doctor slice my bladder open in the prosses and then lied to me about the reason. It was the doctors that told me that it was in my best interest to have this prceedure done. I was never told that I could have all these problems and side effects I keep telling myself that it will go away, or maybe its something else but deep down I know its not and nobody gets it. I believe that since having our tubes tied has caused this much pain and problems that to have it reversed should be consittered a medical reason and be covered. I hate that there are ppl out there that want it reversed so that they can have more children and then there are ppl like us who want it reversed so that we can be put back to our normal selves knowing the only way to do it is by paying thousands of dollars that some of us can’t afford to have it done. I myself live in calgary, AB, canada and I was never offered counsilling either. I don’t even have a sex drive anymore. I feel like a nuddered cat. I’m just glad that I’m not the only one that has these systoms I just wish that I could find a doctor that doesn’t tell me that its all in my head. Like you I have now put all my extra time into getting this tubal reversed. thx for having the courage to post your personal feelings of this on the web to help those who are going through same thing to not feel so alone, and lost.
November 16, 2007 at 1:25 am
I had my tubes tied 4 and a haIf years ago I am having alot of the bad symthons to I can not belevie it.Mostly I have bad periods and mirgants
November 21, 2007 at 1:03 pm
I am pregnant with my fifth and FINAL child. I went to my Dr. last week. He asked me if I was planning on having my tubes tied. I told him NO WAY!!!! I told him I have SEVERAL friends who have had the procedure done and have had NOTHING but PROBLEMS ever since, and the Drs. CANNOT find ANY reason WHY they are having HEAVY BLEEDING almost EVERY DAY of the month, SEVERE, HORRIBLE abdominal PAINS, mood swings, etc, etc!!! I told him I went on-line and checked out PTLS, and he told me there is no ’scientific evidence’ proving that the condition exists!!! I am like–HELLOOOO!!!! MILLIONS AND MILLIONS of women have been on-line talking about their PTLS symptoms–is this ALL just in “THEIR HEADS??” I don’t think so!! Look how MANY YEARS it took for science to admit that smoking causes CANCER!!!! DUH!!! Yet people were dying from cancer ALL the time, and the common link was a lot of those people had been SMOKERS!! Anyway, there is NO WAY I will get my tubes tied PERIOD!!! I told my Dr. if my husband decides he will get a vasectomy, that is TOTALLY up to him!!! If he does NOT get a vasectomy, we will use another form of birth control. My Dr. acts like you either get your tubes tied or your husband gets a vasectomy, and that there are NO OTHER OPTIONS!! Well–we have done just FINE with ‘other’ forms of birth control, and have NEVER had an ‘oops’ baby yet!!!!!
Anyway, thank you ALL for your comments!!! I hope and pray you ALL get the relief you DESERVE!!!
I even found a website where this group of medical professionals are TRYING to get a law passed that would FORCE ALL Drs. who perform this surgery, to tell you what side effects you MIGHT have after the procedure, and you would HAVE to sign a waiver that you understand the possible side effects!!!
OK!! Thank you for letting me ramble here!! Best wishes to ALL who are suffering with this HORRID condition.
November 23, 2007 at 10:25 am
Thanks for sharing this. I have been doing some research on this myself… after stubbling onto it accidentally. I had my tubes tied 13 years ago next month and have atleast HALF of these symptoms on a regular basis. I was 22 when I had this done, I did not have access to the internet, nor was i offered any ‘counselling’ prior to I was also young and never bothered to do any research. I WISH I HAD. I have gone to the doctor with pains so bad in my abdomen that I can barely stand up straight, and the bloating comes hard and fast… my belly baloons right up. I have been told by doctors that it is just gas pains, and to track what I eat…. stupid me I BELIEVED this load of crap… now after reading the evidence I believe what I have suspected all along that these symptoms are related to my tubal. My periods were NEVER like this before tubal. I am angry about this.
The next step is finding a doctor who will understand these symptoms and their relation to TL even if it means going doctor to doctor (I am fighting this one to the bitter end), having this reversed (also because I want a couple more babies), and joining in on the action for better education, counselling and fighting for women to have this procedure reversed and COVERED under health care.
Thanks for this post. Lets take a stand ladies, we are worth it… and we are worth it to our loved ones who put up with our moods, ailments that are assoicated with this.
November 25, 2007 at 10:05 pm
Thanks alot for sharing this… I’m 22 years old with 4 kids and married… About 6 months ago i decided to get my tubes tied, thinking hat was gonna solve my problem from bearing more kids… Well now, being that its 6 months later i’m going through pure hell with my body, I noticed about 4 months ago I started to have severe abdominal pains, heavy periods, night sweats, memory loss, weight gain and plenty more side affects. Not to mention walking for a period of time also puts me in crazy pain… I’ve been really thinking about getiing my tubes un-tied, because of the pain. My husband thinks its a bad idea because he’s afraid we may have more kids. I feel like i’m lost can someone please help me????????
December 5, 2007 at 9:12 pm
OMG!!! I had a tubal in 1998. I have thought for at least the last 7 or 8 years that I was going crazy. I had decided that I had a hormonal imbalance, after studying my symptoms and researching on the net. I have worked as a nurse in a doctors office for 10 years and have discussed the possibility of my tubal causing my symptoms and have been repeatedly told that they could in no way cause them. I just decided on a whim to look up tubal ligation symptoms tonight and I cannot believe that all of this time this is what has been the matter with me. Thank you sooo much for this site and keep on fighting, eventually the medical society will have to acknowledge this.
December 7, 2007 at 7:40 pm
Wow…I have NOT had a TL, but stumbled upon this info while researching natural family planning. Think I’ll try that instead. Thank God I found some of these sites on PTLS though…my sister is planning on having one next month. I hope she changes her mind.
December 11, 2007 at 3:19 pm
I have tried to deny the possibility of PTLS for several months now, but I just can’t. When I was instructed by my insurance to choose a doctor, I was informed that a tubal ligation would be fully covered and that I needed to choose a doctor who was trained to do it. Not having to worry about pregnancy, as for all of you, would be such a blessing. My fiance and I don’t have much money and I need to get back to work to afford the two children we will soon have! But I looked up the methods and I was shocked!! Did you ladies learn beforehand that they cut off your only supply of blood flow through your reproductive organs?!? What kind of idiot doctors do we have that don’t know or even believe that women can suffer side effects by cutting off the blood supply to living, functioning organs? Certainly they have to suspect this, right? As much as I want to be sterilized, I simply can’t go through with this…
My instinct and my common sense both tell me that it is wrong. I’m glad that I looked up info on the procedure instead of just agreeing to it. Doctors do not always know best. Until they find women’s health and the quality of their lives and that of their family is important enough to research this matter, I would not recommend it to anyone. My husband is willing to have a vasectomy instead, but we’ll have to wait until we can afford that and I am concerned of side effects that may occur from it. I’m sure they won’t compare to PTLS, but I don’t want him to suffer in any way, either. So off to research I go!
My condolences to all of you that have suffered from the ignorance of the medical profession.
December 13, 2007 at 5:53 pm
I’m having the novasure procedure and ???? tubal ligation done tomorrow per my doctor’s suggestion. I will definitely have the novasure done, but I’m definitely going to decline the TL. He only suggested it because it’s not a good idea to become pregnant after having the novasure procedure done. I thought, “Sure, why not?” I’m horrible with pills anyway.
But after reading up on this TL thing, I have completely changed my mind. The novasure is a must since I have been heavily bleeding non-stop for a couple of years. (only a slight exaggeration) We think the heavy bleeding is a result of being on depo for a couple of years, then suddenly stopping.
Anyway, thanks for all the warning. I’m definitely going to decline tomorrow.
December 14, 2007 at 2:17 pm
And I thought that I was just going crazy! I have had about 28 of these symptoms for the last 7 years since having my daughter. It didn’t really start until the 2nd year after and just got progressively worse. I was never informed of this possibility and it was never even mentioned all the times I would see my doctor for pain, depression, migraines etc…. Had my thyroids checked and everything came back normal….was on 2 different types of depression meds….prozac and wellbutrin….neither worked…..I have horrible migraines so bad sometimes I cannot lift my head, when I had NEVER gotten them before the TL. Cramps hurt so bad and I bleed so much, it is unbelievable. My hair falls out in clumps, my extremities go numb sometimes, my skin constantly itches everywhere and the fatigue, mood swings, lack of sex drive and my feelings about life almost ended a marriage…..I am so upset over this whole thing. I want a TR very BADLY but the insurance won’t pay for it and I don’t have $6,000. This is so wrong, insurance should cover the procedure as a treatment to a sickness….that is what this is….a sickness!!! The doctors need to wake up and realize that this is not “made up” that this is a REAL issue and that women like us need help. Thank you for posting this, I am going to print all the posts out and take it with me to my GYN appt next month!
December 24, 2007 at 12:53 pm
Thank you for placing this on the web. I am 5 months pregnant with my third child. I am 39 and was considering a tubal. I wanted to research any risk factors prior. This post has helped me decided. I am so sorry for all you have to go through, and I thank you for letting me know.
January 2, 2008 at 4:11 am
Well I too have most of these symptoms…last month during my period the pain was so bad my doctor wanted to send to me to hospital. After a pelvic scan which came up clear I was still none the wiser. I had my TL nearly 4 years ago and during and before my period I am in so much pain I can bearly move and need heavy painkillers to attempt to ease the pain. I am only 27 and can not stand the amount of pain and all other symptoms that come with it knowing i have a long time of it to go. Has anyone done or known anyone who has had a TR that has ended this nightmare as I feel this maybe the only way?? Your response would be great. Also have many of you been diagonised with IBS since your TL as I feel there is a connection to my TL and IBS? Nice work all involved in this forum orthough sad it is also comforting to know I am not crazy and what I feel is real. cheers nic
January 2, 2008 at 9:14 pm
A friend who is considering a tubal asked me if I had any side effects from having my tubes tied a year and a half ago. Up to then, it never occurred to me that this could be what was wrong with me! Since resuming my periods after pregnancy, my bleeding has been so heavy that I went to my ob/gyn to get a check up. He said it’s nothing. I also have much shorter cycles and mid cycle cramping and pain that has gotten so bad that I can barely stand sometimes. Thanks so much for the info; at least I now know what’s behind this!
January 5, 2008 at 6:50 pm
I had my reversal. It has changed nothing. If you know of anything else that works, I would really appreciate anything.
I agree, it’s the worst thing I have ever done to myself. Hormones don’t help either.
January 6, 2008 at 12:05 pm
My name is Brandi, I am a 26 year old mother of 2. I had a c-section with both of my daughters. Being on a fixed income, I opted for a tubal to prevent further pregnancies that I knew we couldn’t afford. I had been allergic to most condoms, and lubricants, and felt that birth control pills were not right for me. I thought I was being a responsible person. It has been 3 years since my tubal. A little over a year ago, I started having problems. Cramping, back pain and swelling, extreme pain during intimacy, constant fatigue, mood swings and much more. So, I went back to my doctor. After only doing a pelvic exam, he informs me that I have endometriosis. He told me that my options were either take continuous birth control pills, or have a hysterectomy. When I told him that a hysterectomy wasn’t an option, he basically told me to either have it out now and make it easier on myself, or have it out in my thirties when it is too severe. He also suggested Lupron, a very expensive drug treatment that has to be repeated for effectiveness. I was so upset. I couldn’t imagine having an organ removed! I hadn’t taken BC pills before, why would I want to take them continuously, that’s why I’d had the TB to begin with? So I began to research natural alternatives for endometriosis. I began to take several herbs and supplements for what I thought was endometriosis. But before long, I started to develop symptoms not belonging to endometriosis. Nausea, dizziness, headaches, insomnia, mood swings, extreme loss of libido, vaginal dryness and extreme itchiness without a yeast infection, tenderness and sensitivity and pain during and after ANY intimacy. My relationship with my husband began to suffer. He couldn’t understand why I was hurting, or itching or bitching all the time. He began to think that I had lost interest in him and didn’t find him attractive. I felt insane. I kept telling myself that if only I would relax, or eat right, or exercise more, I would feel better and not be in some sort of pain. Now I am 13 days late to start my period. While researching possible pregnancy after tubals, I came across many PTLS web sites. Finally I know that I am not insane, that it isn’t all in my head. I appreciate you and all the other women who have shared their stories on this and many other websites. I am now trying to find natural ways to help with PTLS, as I cannot afford a reversal. I will keep coming back here from time to time and posting any info I can find. I know that there are a lot of women out there that listen to money hungry doctors and have expensive procedures done, including hysterctomies, and are turned away when they mention PTLS. Stay strong. Form bonds. There has to be another way. May God Bless you all.
January 6, 2008 at 10:50 pm
Hi, I had a tubal ligation done 6-22-07 at the time of my c-section. I suffer from feeling like I always am on my first day of my period with that solid cramping and my periods are now at 24 days instead of 28 and the cramping is pretty much all month . I want to know if anyone has had the symptoms go away after a tubal reversal ????? I hear alot of stories about the effects of the tubal ligation surgery but I read nothing as to wether the problems stopped after you have a reversal . Can anyone let me know??? If you have had the reversal done and you have a story either way , please let me know . kimmycar3@comcast.net
January 9, 2008 at 9:02 pm
Hi, I was glad to read that I am not the only one who has these symptoms. I had a tubal ligation almost 5 years ago after having my 4th child. A couple of months after having the surgery I went and told my doctor everyhing that was going on and she said it was because of chilbirth and things would get back to normal. I had already had three children and had not experiened symptoms like that. But I believed her and waited. Well it has been amost 5 years and I am still waiting for everything to get back to normal. I have a lot of the symptoms listed but the ones that bother me most are the migranes, heavy irregular periods, and the hot flashes. My friends have told me I sound like I am starting menopause but I am only 32. I just don’t understand why my doctor didn’t tell me that there was a chance this could happen.
January 12, 2008 at 9:19 pm
I started my period at the age of 10 and I got pregnant at the age of 15 with my first child. My periods seemed to be regular I always suffered from bad cramps and heavy bleeding but they came regular every month and went away. I had my other son at 19 and lost a child in the same year.I still didn;t have any problems. I then had my last child at 21 and I got my tubes tied two months after he was born. I started to feel light headed and I didn’t have a period for 3 years straight and then my doctor at the time perscribed me some pills to make me start my period and I came on for 4 days and went right back off. I get dizzy I am always depressed. I have hot and cold flashes I get frustrated very easy not to mention other stressful situations! I get shaky my hands shake for no reason, I just started my period out the blue after all this time and have been on for 14 days straight and its getting worst I am bleeding every wear running through ttampons and pads I severe back aches I have gained 92pounds form all this and I am 24 years old single mother with three babies so it is very hard.I have to walk my kids to school and its hard already but when i have to take a three year old with me and I am bleeding like crazy I have to watch how i get out the bed and I take about 6 showers a day I have ran through toilet paper by the day I am sressed and confused I don’t know what to do I am kinda of scared.
January 23, 2008 at 3:23 pm
I had my tubal in November of 2007. December’s period was very painful and today, after having to spend yesterday in bed due to UNBELIEVABLE cramps, I decided to google “intense cramping after a tubal ligation”. I can not believe all the hits. Are you kidding me???? My doctor told me NOTHING of the possible side affects. Prior to the tubal I had very normal periods, once a month, and the cramping was minimal and lasted for just 4 to 5 hours. I can not believe that doctors aren’t required to warn patients about these side affects. Now what????
January 25, 2008 at 2:04 am
Hello Ladies,
I am a 39 years old woman from the netherlands (europe)and I´ve had a tubal ligation by the essure method only on one side, the other one is not done yet. Is there anyone out there who had the same type of sterilization by essure?
My doctor told me this sterilization is not reversable, but I contacted Chapel Hill Reversal Clinic in the US and there is a possibility to do it. I suffer from PTLS as well and have many of the symptoms. I will go to a doctor who works with bioidentical hormones to see if that works in a few months before I decide for reversal. I will have to travell all the way to the US for that! I hope there is anyone out there who has experience with reversal operation or essure sterilization??? and anyone with PTLS symptoms after essure???Please let me know!!! Good luck to you all!
January 26, 2008 at 7:58 pm
It just dawned on me that I too may suffer from this. I had my third child back in Feb 2006; and at the same time had a tubal done. I was actually warned by a family member not to get it done, cause she claimed she suffered a lot of side effects from the procedure…. but I decided to do it anyway. To my dismay, I find myself going through at least half of the symptoms posted above. I went to my doctor around 7 months ago complaining of depression and major mood swing symptoms- she wanted to put my on depression meds and I declined, so instead she put my on birth control pills to see if my homone levels would even out…. here I am 7 months later still fighting the same thing- but I feel like they’ve gotten even worse…..
But now what do I do? A tubal reversal is out of the question for me….. money is a big issue here. Is there anythhing natural that I can take? Does anyone know of anything else that might smooth the effects of this dreaded thing????????
Crying for help in Florida.
Stacey
January 30, 2008 at 6:10 am
I just found out about all of this. I had my tubal in April of 2006 3 months after my 3rd child was born. My husband and I decided on that so if we wanted more children I could have a reversal. But like Stacey above me I suffer from 1/2 those symptoms and so do many women I know. In fact out of the blue i have been diagnosed with epilepsy. Which started off with the most horrible headache imaginable.
My husband is a Marine and we have Tricare and I do know that in the case of our insurance they will pay to have a reversal if it is medically necessary. After reading many things on this “syndrome” as they call it. I will be talking to my doctors. I would hope that if I was allowed to have a reversal that the epilepsy would go away. (i can always hope).
Just sick of feeling sick in Camp Lejeune,
Ange
61 | Tubal Reversal in Vancouver. « Retarded Rugrat
January 31, 2008 at 12:03 pm
[...] PTLS or Post Tubal Ligation Syndrome. Post Tubal Ligation Update. Tubal Ligation Reversal Videos. [...]
62 | Post Tubal Ligation Syndrome « A Golden World
January 31, 2008 at 11:18 pm
[...] on Friday, 1 February, 2008 For those of you who read Dawn’s blahg, you may know she wrote this post about Post Tubal Ligation Syndrome, or PTLS in short. Having been through the procedure of tubal [...]
February 6, 2008 at 12:38 pm
FEB 6,2008 What a NIGHTMARE my sister in law happens to be at the moment in a hospital due to her tube being tied. She had this procedure done when she was 25 years old she is now 30 and now she is suffering awful side effects. Her body started to get a swallow and started to have vision problems.. She started to have other complications also.. I also heard from older woman that it gets worst when woman with their tube tides go through when Menopause comes around… One can’t go against nature and tide the tubes with clips or rings and then not to expect side effects. Doctors will never tell you about the side effects because they’re out there to control the population and don’t inform woman of the outcome be careful there is serious complications that come with having our tubes tide.
Sofy
February 20, 2008 at 1:21 am
OMG I thought I was going crazy. I had a TL whilst having a c section for my 3rd child, thinking it was the easy option of birth control considering my 2nd and 3rd child are 11 months apart.
I have experienced 75% of the above side effects and basically have talked myself into blaming me and not coping with 3 kids and life in general.
Spoke with my Dr in OCT he suggested to have an Merina IUD to control the blood flow and frequency. No sucess six months later. After researching the web and seeing the feedback from so many women. I’m going back to my Dr for a reversal, I need to put an end to this nughtmare!!!
February 20, 2008 at 6:58 am
WOW…WOW…WOW…is all I can say right now and here I thought I was going crazy…people have thought me crazy for years since my TL….get this; I have almost exactly every single one of those side effects; not to mention I keep telling the doctors, I dont know whats wrong with me…I never had allergys; cramps; irregular menses and 2x at the hospital for some type of itchy blotchy skin hive that is explained out jsut an allergy to something…I am so damn sick of being tired but can’t sleep; I am on prescription sleep pills and tired of being so moody: I am on prescription mood stabilizing pills also. I feel much older than my age and I never would have even found this if I was not researching a reversal so that my new husband and I may be able to have a child. Thanks for the info….I would say that I hope you feel better, but it won’t help, believe me, I do know. But thank you and good luck to you also.
66 | Post Tubal Ligation Syndrome « Pessimistic Idealist
February 25, 2008 at 2:03 pm
[...] is a medical condition unrecognized in most medical communities. Please visit my Angel Friends post HERE for incredible anecdotal evidence that it DOESN’T exist only in the mind. It causes such [...]
February 26, 2008 at 7:54 pm
I hope you don’t mind some input from a person you don’t know, but after bopping over from Dave’s blog and seeing this…
I had no idea this condition even existed, but now that I think about it it does make sense. Everything in that part of our bodies is either governed by, or the source of hormones. Bless you for posting this and letting other women know.
March 11, 2008 at 3:36 pm
I have an appointment with my OB/GYN later this month to discuss the possibility of a hysterectomy for my heavy painful periods. Since making the appointment with him I have had an increase in other syptoms. I was joking with a girlfriend – who is pregnant – that if it weren’t for the period that I have had for 2 1/2 weeks now, I would think I was pregnant. I even took a pregnancy test. I’m exhausted, my emotions are everywhere. I had my tubal 2 years ago, but didn’t resume menses until about 1 year ago – and at first it was OK. I noticed a little pain with intercourse mid-cycle, but that was all- and that has gone away. The last few months it has gotten pretty bad. I actually asked my husband if there was a chance he had given me something. I will discuss all of my options with my dr., but I am wondering —– Has anyone else been diagnosed with glaucoma? I was diagnosed 6months after my tubal with no risk factors for the disease.
March 24, 2008 at 12:18 pm
I just recently (3/7/08) had my tubal reversed at Dr. Berger’s clinic in North Carolina. I have spent a lot of time reading the message board on his website and have recently learned about Post Tubal Ligation Syndrome and am totally flabbergasted. Following my tubal in November 1995, me sex drive went out the window and my hair started becoming thin. I never made the connection until I read the message board. I was never offered counseling either and as a matter of fact the doctor who did my tubal told me that it was irreversible. Hah!!! Finding Dr. Berger was a blessing and although most insurances will not pay for TR, there are financing options available. We are paying $202 a month with the option to pay it off within a year without interest accrual, which we plan to do next income tax time. There should really be something that can be done to these doctors who are failing to inform us of the risks and side effects associated with TL. I would highly recommend Dr. Berger to anyone seeking TR.
April 1, 2008 at 4:02 am
Hi, i had tubal ligation just over 3 years ago. the sweats started almost immediatley after and the itching all over my body is constant and drives me insane..consequently i am tired, irritable and weepy alot of the time. I also have the stabbing pains in my abdomen which i was under the impression from my doctor is IBS?. I associated the other things with the operation as my doctor told me when i told her about them that i will experience slight menapousal sympoms for a while which will settle down. They have not settled down and reding the list above i realise i have at least half of the symptons for PTLS which i had never heard of before now.
Has anyone in the UK had a success with their doctor reffering them to have the clips off after discussing PTLS?
April 9, 2008 at 3:11 am
Hello
I am here on the internet researching what I thought was the answer to my conterceptive problems and I keep hearing horror stories and I really have to say I feel so sorry for u guys who are having a hard time it cant be easy. I have PCOD and the pill and the coil and all the others dont work for me I am 29 and having my third child in a few months and my husband and I think three is enough for us. I was wondering if anyone knows how a Tubal can effect someone with PCOD and has anyone had a happy ending its nice to know if you have. My doc says i am too young and wants me to wait but i dont know what to do now.
April 9, 2008 at 12:15 pm
Hello -
I just wanted to share my story. I had a TL in July of 2001 after a c-section. My husband and I had a change of heart in 2005 and wanted another child so we had a TR with Dr. Richard Levin ( http://www.babies-by-levin.com) I had no signs or symptoms of PTLS at that time. We ended up having 2 more children and I got them tied again ( crazy – I know). This time I think I have PTLS. I have over 3/4 of the symptoms on your list and am sooooo annoyed by them! I can’t have the reversal again because most of my tubes are gone now ( nothing to re-connect) Is there anything else anyone knows or has done to help themselves without surgery?? Thanks to all 
And if you’re considering a reversal – Dr. Levin was great! I have heard good things about Dr. Berger too ( sp?)
Lynsi in MI
April 15, 2008 at 5:45 pm
Hi, I’m 24 Yrs old and had my TL done three yrs ago. I have terrible cramps, heavy periods, irregular periods, they last 10-15 days sometimes. And sometimes don’t come at all. I had my TL in which medicaid paid for it. I was NEVER given ANY information about it. I had problems as soon as I had my 1st period after my pregnancy. I knew something was not right with my body. The doc just said it will take a while for my body to adjust. It’s been 3 yrs. I have migraines so bad I cannot function. Mood swings before and after my periods. I’m very familair with ALOT of these symptoms. I haven’t went to the doctor at all because I don’t have insurance. I cannot afford insurance nor the $ to have the reversal. I can relate to all of these things that are happening to other women as well. Looks like I’ll have to take out a loan and get it done. Since now I know I’m not crazy!!!
April 19, 2008 at 9:39 pm
WOW! Thanks so much for this website! I have had 1 umbilical hernia repair (before children), 3 C-Sections, with my children being very close in age (3 babies in 4 1/2 years) and 1 ventrical hernia repair after my 3rd C-Section. I had a tubal after the birth of my 3 child. I have been racking my brain trying to figure out what is wrong with me. I’ve seen 4 different OB’s and a surgeon to try and figure out why I’m having all of these symptoms. Most recently I had an endrometreal biopsy which came back normal and several ultra sounds which detected small fibroids. I’ve attributed all of my pain and suffering to my C-Sections, my hernia surgery’s and fibroids. I think I’ve finally found my problem thankfully just before I’m scheduled to have the Nova-Sure (ablation) scheduled. This is what my OB recommended. I will be calling him this week to talk this over with him before I get any more surgeries or procedures done. While I can’t say that I have all of these symptoms, I can say that I’ve experienced most of them throughout the 2 years after my tubal, which was in 2006. I also work 3rd shift 4 days a week and have 3 toddlers ages 2, 3 and 4. So ultimately I thought that most of these symptoms came from being exhausted from not getting enough sleep and working 3rds, but I think I’ve found the culprit! Thanks so much!
April 23, 2008 at 12:34 pm
oh my goodness.. all these things i’ve been suffering from ARE NOT IN MY HEAD!?!?! or “no big deal” as some have said?….. i can’t believe it.. now i’m going to seek help… i already have, but didn’t get anywhere. Any time i listed these symptoms to a doctor, they handed me prozac…. last i checked, prozac doesn’t help with pain….lol
May 7, 2008 at 2:05 am
Julie, Your comments I find interesting I went back to my OB and he suggested ablation too…which I don’t think is the answer. He still refuses to do a reversal and doesn’t believe this syndrome exists!!! Why would he, he is not living with it! I’m saving for my reversal! Good Luck!
May 9, 2008 at 3:19 pm
I has given this link by a friend who is suffering also from her tubal. I am pregnant with my 6th child and was adamant about getting the most permanent birth control after baby is born and a tubal I thought was best for me but after reading all you have written and talking with my friend I am going to try and find an alternative birth control. Thanks so much for sharing your story and helping other women.
May 12, 2008 at 11:46 pm
Hi my name is belinda and iam from australia iam 25 years old and have 4 kids under 6 ages are 1.5,2.5,3.5 and 6.
I had a emergency c-section on my 1st due to 2 long weeks of high blood pressure then my second was a very fast drug free labour with episiotomy, 3rd was fine and fast also and fourth was a few hours longer and a small fine graize.
I had a tubal ligation after my fourth as my children are quiet the handful dont get me wrong i love them but they have soooo much energy.
Here in australia if you have your “tubes tied” within 48hours of having your baby its free but if you leave then come back then its a about $200-400.
My sisiter in law had hers done after the advice of me (sorry too ) at that time i wasnt suffering as i am now.
After about 3 months of having my last child i started to have really strong migraines (which i have only had one in my life when i caught 3 bugs at once) then my symptoms got worse as the months went on.
My period started to be on time every month then 1 week early one week late then 8 days then 3 days and so on.
At this current month i have had the worse bout of all sudden and massive bloating as if i was 5-6 months pregnant.
A mind numbing migraine severe light head near vomiting when i stand muscle cramps instant sharp pains to the left of my lower stomach loss of appetite etc.etc.
I have counted that i get 18 sideaffects of the 347 you have listed.
The odd thing is i only get them in the week before and days right before my period then once its about day 5 all sideaffects cease and i can return to “normal”.
I weigh about 90-100kg i excercise really hard to maintain my weight at a level in which i can be satisfied with but as soon as i stop for a more than a week the weight creeps back quickly and thats even with watching what i eat.
I am glad i found this reading and to know thta iam not the only one who suffers.
Thank you to all those i hope you find the help you need.
Regards belinda
May 14, 2008 at 5:02 pm
So many women have responded. I can’t believe I didn’t do research before I had my surgery!! I could just kick myself.
I am 33. I had my tubal done with my son March 27th of last year. I was awake during the C-section and during the Tubal part of it my blood pressure dropped dangerously low… I thought I was going to die. I felt the room spin and I started sweating everywhere in this cold room. They were all worried, the doctors and nurses. I came around but… I haven’t been the same since.
I had c-sections with all of my kids. I have 7. two sets of twins. This one was different. all of the doctors and my parents and everyone made me believe that getting my tubes done… getting fixed, was the only way to stop me from reproducing. Bad girl. Too many kids. Whatever. They are all off living their lives and I am stuck at home in the dark because I have had a migraine every day for a year. I caused myself liver damage taking exedrine every day. Now they have me on meds that gave me kidney stones. My periods are longer and choppy. I can’t lose weight no matter what I eat, or don’t eat. I am too tired to exercise, I used to play outside with the kids but the sun hurts my eyes now. It’s all I can do to take care of them. The older ones help me with the younger ones. I have the best kids and husband in the world and love my life but I feel sad and lost and confused all the time. I didn’t put it together until a week ago that this could be from my tubal ligation!!!!
I asked my doctor and he said “highly unlikely, we will check your hormones and if there is an imbalance we can give you some hormone pills.” I want to rush to the nearest reversal doctor right now, give him my ex-husband’s tax return garnishment that I got for back child support and get put back together! I at least want to see if I am even a candidate.
I am so sorry to my body and my family that I let peer pressure ruin me at 32 years old. I felt uncomfortable about the precedure but felt like I had to do it. I am so scared that this is only going to get worse and turn into more problems the longer I wait. I know now that this is what is wrong with me. I have spent the last 6 months letting them poke and praud me, scan me, mri my brain- because of the headaches only to come up with maybe a disk in my neck causing some of the headaches but not all of the headaches. Possibly a hormonal imbalance. That’s when the sirens in my head went off. Oh but ofcourse… not from the tubal… oh no.
We could have used other forms of birth control. I could have lied to my parents and anyone who thought it was there business how many kids I have… and been perfectly healthy right now. My doctor made it sound like the only side effect was no more kids… not “oh, and life as you know it may be over!” That would have been nice to know.
bless you all. It’s sad that I am not alone… but helpful.
May 19, 2008 at 8:58 pm
I just wanted to say thank you. I was beginning to think that I was losing my mind! I had my TL after my fourth C-Section. And I actually did ask my doctor about the side effects and whether or not a TL would effect my periods. He said, “There isn’t enough data to conclude one way or the other.” (sigh) I’ve been living in hell for at least two weeks out of every month for the last five years. I have symptoms that made me think I was headed for the crazy bin! I wondered, how could headaches, palpatations, tingling extremeties, etc. be connected to my TL? Yet, I’ve never felt the same! I never used birth control pills and painful periods have been a part of my life since I was 12! But this? I have had two periods a month at times. I’ve had periods last 10 days. I have felt like I was giving birth! Hell, I spent today in bed because I couldn’t get up. I’ve been prescribed iron and have been told that it’s all stress related!?!?!! WTF?!?!
Out of your list of symptoms, I have over half. I honestly feel like my body is rejecting or trying to respond to my TL. I am a young woman and I don’t want to have a hysterectomy. I regret having the TL all the time. The painful, heavy periods are just the beginning of what I’ve had to contend with. And I am searching for a doctor who will not only believe me but help me. I am desperate. But I am so grateful to all of you who have shared. It has helped me so much to know that I am not alone.
May 23, 2008 at 2:45 pm
Counseling before having a tubal ligation rarely, if ever, includes the possibility of the menstrual and other symptoms encompassed by the term “post tubal ligation syndrome”. When women develop problems after having their tubes tied, they are frequently assured that their symptoms have nothing to do with the tubal ligation procedure. The article http://press.tubal-reversal.net/2008/post-tubal-ligation-syndrome.html promotes awareness of PTLS and the possibility that tubal reparative surgery may remedy the problem.
May 24, 2008 at 10:08 am
I’m 38 and 3/07, two months after my 3rd child was born, had a tl done. I had had two miscarriages after my 2nd and had to address some potentially serious medical conditions with my children as babies, in addition I had a tough pregnancy with my last child. I wanted to move on and dedicate my life to my 3 children without the trauma of miscarriages. I’m maxed out with 3. I was determined to do it. I didn’t think much of any risk; in fact I felt slightly empowered by taking on the responsiblilty. The doctor made it seem like no big deal. He said that there was on risk from the anesthesia. Some women might have a heavier period but he said that was unusual. I was #3 on the assembly line that day. I was back in the room in 45 min. I thought I would be home in about an hour or two. I was coaxed into eating although I felt nauseous and dizzy. Finally, they knew somthing wasn’t right when they did an US. I WAS BLEEDING INTERNALLY! They brought me back to the OR. My husband waited with no news for 31/2 hours! The OBGYN never did find out where the bleeding was coming from. I was told by my neighbor(who happened to be the anesthesialogist) that the OB finally called a surgeon to look at me. My neighbor even said he was going to suggest it because the OB was taking so long. The OB appologized for the complication. About 2 months later I had some depression, lack of sex drive and pain, yet the OB said that it was common and that it wasn’t anything caused by what he had done.(A strange comment now that I think about it) I discoved this site because I was researching nighttime sweats. WOW was I surprised at how many PTLS symptoms I have! I am disheartened to think that I could have put myself into premenopause and ruined my body and quality of life that was great before I had this done. I research everything for my kids, husband, parents, siblings. How could I have been so STUPID not to do the same for myself. I am going to research having it reversed. I don’t think I’ll keep my July appt with my OB. I don’t know if he DID something to cause my symptoms or whether it’s form the PTLS or both. Thank you all for sharing your stories. I felt so alone.
May 25, 2008 at 8:51 pm
I have been searching in vain to find out why at 35 I am suddenly bipolar. I have almost every symptom listed above. I have been so miserable this year that I thought I must have cancer or something. I am scheduled for several tests to rule it out. I can’t even begin to know how to deal with this. I know I am not bipolar. It was me that suggested it to my doctor desperately trying to get on the right meds. It has been twelve years this June since I was talked into the tl. I was eight months pregnant when my husband and doctor suggested I do it for my health. After miscarried twins my son was born 6 weeks early and my daughter was born just days after signing the consent. She was born 4 months early. I didn’t do any investigating. I trusted those I respected and loved. Everything has been so different. I am not married to that person anymore. I have found a new doctor. My children are the reason I get up at all and I do not find fulfillment in my life anymore. I have moments I cherish but they are brought in by my family. I feel very little. I crave fulfillment but I feel like I have a large hole in my heart. I hate the guilt I feel everyday when I say “I don’t feel very well right now.” I hate living but I can’t afford dying. Why do people do this to one another? Why was I so gullible? Why am I not relieved that I am not bipolar? Probably because if I were bipolar the medication would be working. I have taken this poison for 5 years and the doctors have been scratching their heads as to why it isn’t helping me more. I just want to thank you for putting words to what I have been so desperately searching for. I could use some suggestions as to what medications are used to treat this syndrome.
May 27, 2008 at 6:59 pm
OMG- I had no idea! I wasn’t offered counseling or anything! I did have to sign some paperwork, but that’s it! I don’t think I have side effects, but who knows? Its something for me to be aware of in case shit starts to go haywire on me. dayum…
May 27, 2008 at 7:04 pm
This page of misinformation may just piss you off.
http://yourtotalhealth.ivillage.com/tubal-ligation.html?pageNum=1#1
May 29, 2008 at 7:53 am
I am with all of you. I had my tubal 12 years ago during my C-section for my 3rd child. They told me no side effects. If I could go back I’d send my husband. I have always had long periods 6-7 days, but now they are 12 and that started from the first period I had after my tubal. No question what caused it. I also have heavier bleeding with more clots and ladies it is only getting worse. I am starting to consider surgery as I now have to structure my life around the first two days of my period. With a super sized tampon I can only go one hour between bathroom trips. I usually just stay home, but next year I am going back to work and just don’t know how I will manage.
I have trouble sleeping, panic attacks and headaches too that get worse every year although I will admit those did not start right after the tubal, but the weight gain did.
I lost all but 5 lbs from my pregnancy after 8 weeks, but since then all I have done is gain. It is awful. I struggle all the time with my weight. I now way 6 lbs more than I did the day I gave birth and I am just miserable.
All of this needs to be disclosed to us before we decide to have a tubal and these doctors need to stop telling us it is all in our heads.
June 1, 2008 at 11:04 am
I had my tl 2 years ago after the birth of my 4th son via c-section. I have over half of these symptoms. Feeling like I am loosing my mind! I have periods that have gotten progressively worse to the point that 2 overnight pads for 2 hour intervals during the day and 3-4 pads for coverage during the night and at least one change during the night – I actually woke up in a puddle of blood this past month! Going to the doctor tomorrow and going to request a reversal – and I will jump through the hoops of my HMO, I am an RN and definitely know my symptoms and their relations to my cycles and such! I am tired of this life and want my old life back. If I get pregnant before I get my hubby in for a vasectomy – SO BE IT. At least I will be having SEX again!!!
June 4, 2008 at 9:04 pm
This is a response to azcat. I am finally with a doctor who admits a small percentage of women experience a hormone imbalance after their tubal. Some women have a main artery from their uterus to their ovary or ovaries and it makes them not function properly. After a year of hell, my periods have stopped and I am considered pre-menopausal at 33. I too thought I was crazy all year. I have never had so many horrible images in my head in my life. Not to mention all of the other symptoms that make life unbearable. My doctor wants me to start hormones. (I am also getting an ultra sound tomorrow to see if they can see the state of my ovaries) They can check your hormone levels to see what is off. If you have body fat then you have estrogen so maybe a natural (don’t take the horse pills) progesterone cream from your health food store would help. It is helping me. Just rub a 1/4 teaspoon on your belly twice a day. Check with your doctor first ofcourse, but it really is helping me. I am looking into a reversal, but it may be too late for me since I have stopped ovulating. Not to mention 6000$ cash if you don’t have good credit. For now all I can do is take the hormones. The ones I am taking, progesterone, are plant derived form soy and yams. Yam cream doesn’t work the same. I feel for you. I have 7 kids and thought I was doing the right thing getting my tubes “tied” (they make it sound like they are in a pretty little bow in there). The doctor that did it told me that my ovaries will work just fine. I feel so stupid for believing him. Now, it’s a struggle to take care of my kids the way I want to. Like you I worry and investigate for everyone else but myself. I told my husband that I didn’t want him to get the surgery because I care about him too much. Why didn’t I care about myself that much? I didn’t do any research. I am very regretful. It is heartbreaking. Good luck. Try getting off the other meds if they aren’t working… ween off slowly. That’s what I did. I only take the hormone cream now. It works for me
June 4, 2008 at 9:18 pm
PS- azcat… If you are bleeding a lot, definitely don’t take any estrogen. That will make it worse. If they prescribe progesterone- which is only made in the ovaries and is usually the cause of the ptls symptoms (because it’s low), consider the plant derived ones that you will have to get over the counter. The horse pills that they give you have only 2 compatible human hormones and 7 extra horse hormones, which can compound your problem. When using the cream, you only rub in on 3 out of 4 weeks a month. You stop when you are menstruating. Sometimes it takes a few months to work. It helped me with my migraines within days though. I guess it helps balance out the excess of estrogen. Hope all this helps.
The depression is usually associated with our ovaries struggling, or even dying. Many women suffer horrible images and thoughts when this is happening. So don’t feel alone.
June 8, 2008 at 10:01 pm
I have to ask a question-I am hoping that someone out there will have an answer. I had my tubal done 11 months ago during the birth of my 2nd child. My period were very heavy in the beginning and during my first period I learned about PTLS because I wanted to find out if heavy bleeding was a side effect of a tubal. My periods are not as heavy now-different, but not as bad as the first few months following surgery. I have however, suffered from many other symtoms such as severe severe dizziness (falling down the stairs dizziness), itchy, crawly skin, wrinkles, bloating, heavy and chronic ovulation mucous, severe pain where my ovaries are and the list goes on. I know that some of these symptoms are listed under PTLS, but they don’t seem to be as common. What regret i have about the procedure I have had. I recently went to a fertility clinic and saw a doctor there who does tubal reversal and actually believes in PTLS. He said he would do the reversal, but he also told me that when I had the tubal ligation done that no burning was done and that PTLS only occurs in women who have had cauterization during their tubals. Does anyone know anything about this? I don’t think that is true-my body tells me everyday that it want me to open up the gates again and breath. I also wish that more women would talk about their reversals, relief from their symptoms and recovery from this nightmare. What can we all do to prevent this from happening to more womens.
June 12, 2008 at 8:02 pm
i just had my tubal done on may 14th and i have had nothing but problems.i had my first period since then for 10 days very heavy.i also have had severe pain.i have been diagnosed with multiple cysts.the dr said today they are over 2 cm in size each on the right ovary.i have never had this problem.i was on bcp for almost 12 yrs before that i had irregular periods and i told the surgeon that.well the specialist is doing his own ultrasound next tues.i am requesting a hysterectomy as i don’t want to take pills or use iuds.i am 32 and don’t want anymore children.i don’t want my period to go back to the old way.well i started bleeding again yesterday and it is browish mucousy like almost.i am still in horrible pain on the right side and it goes into my groin,vagina,and right about my right knee.it hurts to do everything u normally do in daily activites even walk.i feel bloated or swollen even.the specialist did say today that my right ovary was a little generous and i was definitely tender when he did his exam.this is misserable and this is just a month after surgery.
June 12, 2008 at 8:07 pm
oh yeah to add to my last post the way i had my tubal done was by the tubes being burnt.i just read the person before me post.now i really wonder if i have this syndrome.thanks
June 19, 2008 at 11:18 am
i have been doing research ever since my ligation jan 24 2007 i knew there was something wrong and i am not the type of person who just takes a doctors word for it. Me and my husband decised to do the ligation not because we didnt want anymore kids but we knew we couldnt afford it im paying for it now buddy i have all the symptoms listed above a severe case my family suffers because of my inabilitiy to function i am a stay at home mom of 4 of the greatiest kids on this planet they do not deserve this. ptls affects the entire family putting a strain on it my husband understand i am not the way this ptls has made me become so that makes it better but for me i regret it i feel empty, and crippled. i know i will have the reversal my poor husband is out of town on the road away from me and our children so we can pay for it he is a boilermaker and there is more money on the road in his field. TO ALL THOSE WHO ARE THINKING ABOUT HAVING A TUBAL LIGATION…… YOU WILL PAY FOR IT IN THE LONG RUN ONE-WAY OR ANOTHER. thanks you for letting me vent !
June 20, 2008 at 11:45 am
Thank you for sharing your horrible experience! There seems to be MANY things that you and I have in common in relation to Ceasarean & TL &TLPS!! It is nice to know that I am not crazy and while I do feel for you and anyone else that may suffer from these symptoms, it is nice for me to atleast know that I’m not the only one with them. Do you know what I mean? Thank you again, this is a big help for me to be able to read up on this as my ‘reading up on’ journey is just beginning. Good luck to you with your reversal and everything!! I will be back to read your follow-ups!
June 20, 2008 at 4:31 pm
All I can say is WOW. Yet another PTLS site..they seem to be growing. I first learned about this about a year ago when i was online surfing trying to figure out what was wrong with me. I too have more than half the symptoms on the list, and even have some new ones that i didn’t realize could be related. My tongue has been burning on and off for the past 2wks..never experienced that one. I had a tubal 2yrs ago with the c-section of my daughter. How simple and easy this is gonna be i thought! i knew immediately that something wasn’t right.
i started bleeding heavily and the periods were upwards of 10 days, and the docs said “that’s normal following a tubal.” over the years they lightened up a bit, but many of the other symptoms remained — creepy crawly skin, loss of breast mass (they’ve dwindled down to almost nothing), muscle aches, depression & anxiety/chronic & crashing fatigue (both clinically diagnosed), thoughts of doom, incontinence ( just to name a few, as if that’s not enough). the list could go on. I sought treatment more than a year ago through my HMO. i got a doctor who does not believe in PTLS. i wanted him to test my hormone levels and he said that wouldn’t tell us anything because on any given day a hormone test could yield different results. he prescribed progesterone to be taken 10days before my period.
My periods are once again heavy, to the point where i bleed through super tampons AND a pad! RIDICULOUS!
I’ve decided to get a reversal. if i have to pay for it out of pocket i will. my quality of life is suffering as a result. i’m tired of walking around in a haze, struggling to find the words to have simple conversations with people. having a tubal was the worst decision i made. God designed our bodies this way for a reason, and we as “man” once again went in and decided to make a change to the perfect way He designed it, so this is what we get. I have a cousin who had a tubal many years ago and she seems fine. she had to have a hysterectomy a number of years back…so maybe that’s related and we just didn’t think about it. she’s on Hormone Replacement Theory as a result.
I’m not foolish enough to think a tubal won’t work for some — but its not working for me, and that’s all that counts…
Good luck to everyone out there.
June 24, 2008 at 5:02 pm
I had a tubal after a c-section on March 3rd, 2008 after my 4th child. I had no idea that there could be side effects. I haven’t started my period yet because I am nursing. But what will happen when my cycle starts? I am sick with regret and fear over what I “volunteered”. Why didn’t my Dr. warn me of potential risks? I didn’t need to do this. I guess time will tell. What do I do? Wait for symptoms? Get regular hormones tests? Ovary ultrasound? What a nightmare I am living right now.
June 25, 2008 at 4:35 pm
I cant even begin to tell you all how shocked and appalled I am. By the time I read halfway through some of these responses I found myself sitting here in tears. A wave of realization consuming me.
I had my tubes tied 9years ago when I had my daughter. I was only 28 at the time. I thought it was the best thing to do for me and my other children at that time. If I only new then what I know now.
Sadly I have more than half of those 30+ symptoms listed above (vaginal discoloration, depression, fatigue, unusual body odor, etc.). I didn’t know what was happening to me. I was told either it was normal with age or I was born with these issues. They actually labeled me with depression and other emotional problems. Well, no wonder! Plus I wound up with Gastrointestinal issues that nearly killed me. Along with all the other physical symptoms I never put it together because they all mostly developed in the first two years. I have been battling them ever since. They even did an exploratory surgery on me to check out my uterus. What was I thinking? I don’t even want to go into the whole list and the procession of how these things developed but it is like the light went off when I read this. Nothing made sense when all of this started happening. Now I am being told I have a glandular problem along with other female hormone issues. Connection? I think so! I wish I had a doctor here in UT, US or anywhere in the US that I can confide in and help me. When I first started doing my internet search it was all about having a baby not just about having a baby its about getting healthy too.
I will be in contact if I find out anything new that I think maybe helpful.
June 25, 2008 at 4:42 pm
AZCAT
I was told that I was bipolar AND manic depressive. For the past several years I have been on different meds to try to alleviate this so called diagnosis. Well I finally had enough. I wanted to feel again (meds numbed my emotions).
I, with help, got off my meds (never do this on your own). Although I can now start to think clearly and feel again. I am back to where I was when this started. My emotions are on a roller coaster. I now know where my problem lies its just a matter of finding the help and it starts here. Pls don’t give up. I, like you, new that I wasn’t bipolar but docs are supposed to be the so called medical “know alls”. I now follow my gut and it says no more!
June 26, 2008 at 1:25 pm
Has anybody had a reduction in symptoms after a reversal? I would hate to undergo another surgery but I would if it made a difference. Right now I just feel menstrual cramps all of the time, although I am breastfeeding a 4 month old baby and I normally don’t start menstrating until the baby is 9 months to a year old. I usually nurse the first year.
June 29, 2008 at 4:54 am
Hi!I had my CS with BTL (bilateral tubal ligation – parkland method) two months ago with my 3rd child. I had my period last month for 4days (normal for me), the first day was so heavy I consumed 10pads,usually i had 6 only. The reason I am searchng is that I am delayed now for 1week and i was thinking oh oh..am i pregnant?, but my Dr. G, gave me the part of tube that was removed so I am consoled that I really had BTL…can anybody tell me what procedure was done to you by your OB to really show you/us that BTL was done? Thanks a lot in advance..
July 26, 2008 at 11:45 am
I search the AOCG site and I found that it’s in their records somewhat about complaints after womens tubal ligations.
August 20, 2008 at 6:40 pm
I wish I had some advice on this as well before my tubal ligation. I attributed many of my feelings towards the “baby blues” and have been convincing myself these symptoms will go away on their own. My daughter is only 3 months old so I hope it gets better!
August 21, 2008 at 8:03 pm
I have had my tubal ligation 2 weeks ago. Even though i had done research and was willing to risk getting the side effects, I know that sounds stupid, I went ahead and got the tubal ligation. I’ve been sitting here with so many upsets in my stomach including diarrhea for 3 days now. I’ve also had night sweats. My question is: Will these symptoms end?
September 26, 2008 at 8:26 am
Hi, thanks for taking my post.
I came across your website today and I like many others am astonished to find that there may indeed be a link between my having had a tubal, and experiencing new debilitating symptoms.
I had my tubal about 2 1/2 years ago. For almost 2 years now I have been suffering with chronic fatigue. I just realised today that my fatigue seems to come and go in a monthly cycle. The fatigue has been so bad I have to go back on disability benefits.
More recently I have been experiencing night sweats every night, as well as worsened depression, bloating, low blood pressure, poor memory, shorter, lighter periods, and worsened constipation.
I am going to discuss PTLS as a possible cause for my chronic fatigue with her asap. I have been working very hard to find answers to this crippling problem for nearly 2 years and I do not wish to continue my life in this way if I can possibly find a solution.
My best wishes to everyone else who is suffering.
October 4, 2008 at 8:05 am
Hi I was begining to think I was going crazy. I had my op done January 2007 and its been hell since. Some months I dont want to get out of bed and face the world cus im so depressed. Im in constant pain every month and my periods are so iregular. My mood swings are terrible. With head aches and dizziness. Does reversal help with ease the problems?
October 5, 2008 at 2:57 pm
I hate to say it, but you can bring it up to doctors about PTLS all you want, but doctors will NEVER listen to us, it’s deeper than this, there is a cover up going on here and we’re they’re guinea pigs and money making machines, this is one of the biggest surgeries out there, why would they or should they stop, plus all the surgeries and medications and doctor visits that we have to go through after a tubal ligation, they’ve known about this since the 1950’s this is nothing new to them. This will never come out because of how deep in they are with what they’re doing. Until someone passes something with the legislation, they will never come out with this, PMS wasn’t even believed in at one point, this one is VERY hard to prove even though it’s a syndrome, it’s a sick thing they’re doing to women and their families that suffer along with us. 
October 12, 2008 at 5:52 am
I had TL done in 1998 two years after the birth of our second child. Ever since, I have had continued weight gain, dibilitating mentstral cycles along with many other symptoms too numerous to mention. I have been diagnosed with fibromayalsia and depression, taking medicine for both. After seeing this website, I am sure I have PTLS. This website is a blessing to know that I am not losing my mind! I am 41 years old and feel like I am 90. I now look like a potatoe on a toothpick, having skinny legs and an extremely round belly with thick thighs, contstantly tired and at times dredding to wake in the morning. Had I known then what I know now, I would have found an alternative method of birth control. This procedure should be outlawed!! Never once was I warned of the potential side effects of it. My prayers to all of you ,and your spouses and family) who suffer along with you. And thank you, British Angel, for this website. I will frequent it often.
October 13, 2008 at 8:08 am
I am very happy that I found this website! I too was not told of the possible side effects, risks and symptoms that I could experience after a tubal. What makes my situation even worse is that I also have lupus. Which was part of the reason that I decided to do the tubal rather than continue to put synthetic hormones in my body such as birth control pills. Anyone who is familiar with lupus knows that its best to not take any type of medication like that. So needless to say none of these side effects were explained to me. I suffer from extremely painful cramps and such heavy bleeding that I soak through a super absorbancy tampon every 20 to 30 minutes. Not to mention the joint pain, hip pain, bladder pain, lower back pain etc. I finally thought at one point that I may be suffering from endometriosis and went to my gyno. She said that the only way to know for sure was to do surgery! Well isnt that convenient!?? Some other symptoms I began suffering from within months after the tubal are, excessing sweating. There is not a deoderant out there that can stop the sweating! I have even tried the ones prescribed by a doctor!! Doesnt help. I also no suffer from bacterial vaginosis. Of which I never had before my tubal. I get it approximately 4 to 5 times a year. I bleed in between periods, a heavy bright red! No warning at all so I need to make sure that I carry back up with me at all times. I suffer from severe fatigue and headaches during and after my period. Uncontrollable mood swings to the point that I get so mean I dont even like myself. My hands, face and feet swell so bad during my period that I dont even want to go anywhere during that time. I am in desparate need of a doctor who will hear me and take all my symptoms into consideration. I have been told by 3 doctors that all my symptoms resemble endo. Do I have the surgery? At this point I dont know what to do. But the one thing I am completely sure of is that none of this occurred before my tubal. Did it cause the endo? Who knows, but even if endo is a risk after a tubal, I was never told that either!!!! Anyone considering a tubal ligation should seriously reconsider!!!!
October 18, 2008 at 2:27 pm
Response to Mayshope– I also live in Utah and am searching for a doctor that will perform a TR. Have you had any luck finding one?
I has my TL in 2002 after my second child. I totally regret that decision. I have over 75% of the symptoms. All I want it so be normal again. I think I have changed into a completely different person.
October 19, 2008 at 5:22 am
I know what you girls mean when you say you feel like another person, it’s the scariest and weirdest thing, almost like I fell disconnected with myself, I don’t even know how to feel like myself, it’s like I’m another person and it’s horrible, the wrinkles I got right after my tubal are sick, they’re all over my hands, everyone I know see them, my hands actually look like my 85 year old grandmother and I’m only 34 and I’m also in menopause now, all the GYNO’s have said it’s just my time to go through menopause, I think they’ve lost their minds and are covering themselves here, never had any problems until my tubal. The back pains, cramps, ovaries shifted, fluid under my uterus, brain fog, vision problems, memory loss, high blood pressure, headaches, joint pain (that one doctor said is from fibromayalsia, but it’s not because once I go on hormones it all goes away and I’m at the bottom of the bucket) are insane! If you have joint pain you’re probably not making enough hormones like me, so get them checked, you may have to go on a BCP, I can’t take them anymore though because it’s messing up my vision really bad, I was NEVER on BCP’s before so that’s not my problems, the moment they closed me up from my TL, all hell broke out!!!
I’ve had a tubal reversal and somethings have gotten better, but only 10 out of the 35 that I have, so I know for a fact that it’s from the tubal, otherwise those symptoms wouldn’t have gone away right after my TR, but I think I had them SOOO bad and SOOO many that the TR can’t fix them all, I just have to live like that thanks to my doctors not warning me about this PTLS. AND if I hear ONE MORE TIME from a doctor that I’m regretting getting my tubal ligation becuase I wanted another baby, I’m gonna kick them where it hurts, I HAD a tubal reversal and STILL don’t want anymore kids, I want to feel like ME AGAIN!!!!!
October 22, 2008 at 11:09 am
I too am a PTLS sufferer… I was reading some of these comments and my husband was reading them over my shoulder. After a few minutes… he said “That sounds just like you…” I am 36 years old and I had my tubal 17 months ago after my 3rd C-section. I am a completely different person and I want the “old” me back – desperately!
My problem is financing. I would have the tubal reversed post haste if I had the money. Fact is: I don’t. And I am pretty sure I am not the only one! I am not interested in taking any sort of HRT, nor do I want my eventuality to be a Hysterectomy.
So, I have decided to blog about it as well… on my personal site (http://www.comicalchaos.com). Also, I have created a new site in an effort to solve some issues relating to financing. I’m just getting it started… but I hope those still actively trying to find solutions will visit (http://www.ptlsrelief.org).
Thank you British Angel for taking the time to make this post. Best wishes to all my fellow PTLS sufferers.
October 23, 2008 at 1:35 pm
Glad i’m not alone!! I was wondering if a reversal would help, and from what I have found, yes it will. It’s been nearly 3 years since my TL (c-Section also). The bleeding just never stopped. My worst is my mood swings, lol, OB who did the op said “it’s lucky you wont be having any more children then, with mood swings like that” He denied that TL would possibly have anything to do with it when I took information his way about all of this. Anyway.. to cut a very long story very short….
A natural product called liver aid can help to reduce mood swings and the bleeding, and it isn’t expensive. Only as a tempory measure until I can afford a reversal. I am currently taking half the amount I was taking, while trying a Macca product also (to help with sex issues and try to regulate hormones). I will try anything at this point!!!!
Good luck to you all! I hope at least some of you find a little bit of relief from the liver aid.
October 23, 2008 at 4:08 pm
That’s just horrible and discusting that your GYNO would say that to you about not having anymore kids and it being okay that you’re bleeding like that, I too suffer from PTLS really bad and it gets me so angry with what these doctors are telling and doing to women everyday and they’re just getting away with all this. I wish and hope they get exposed big time for what they’re doing and they get theirs 10x over for what they’re doing to women and their families that all suffer with them.
This is just a sick thing that they’re doing! They know about PTLS, don’t let them fool you for one second that they don’t it’s documented everywhere!
October 27, 2008 at 10:54 am
i also had a tubal done. it’s been almost four months since my twins were born. my first period lasted about 3 wks and 15 days later i started bleeding again this time it’s heavier than i have ever had i go through a package of pads in one day and the cramps hurt like hell in my back,abdomin and my legs i am constantly cold,dizzy,and light headednever have an appetite and now my whole body starts to tremble they tells me i have cysts on my uterus and overies but i have always had them since i can remember and they never effected me like this.they still don’t know whats going on.i have another appointment toda maybe i should bring up what you said in your article and see what she has to say about it.thank you for opening my eyes you helped me out and let me know that i’m not the only person that goes through this
October 27, 2008 at 2:52 pm
I hope she listens to you, I’ve had test over test over test and everything comes back fine, only that I have a MAJOR low hormones and I’m at menopause at 34 years old and have been since my TL 2 years ago, I tell the doctors that something is wrong and they tell me everything is coming back perfectly normal, NO, NO it’s not because you just told me I’m in menopause at 32 years old at the time, I have fluid under my coldasac and about 35 other symptoms, it’s hormonal and that’s just what all this is, the blood doesn’t know how or where to flow anymore and your body is all messed up because of the tubal, they’re gonna find any other excuse to say that nothing is wrong, but meanwhile they themselves have admited there is something wrong when they tell you you’re hormonal, but on the same hand they’ll tell you they’ve found nothing at all and it’s all in your head, they’re not looking for a broken bone, when you say you’re having joint pains, they should be checking other numbers for hormones, because joint pains, tingling and all this great stuff come along with getting a tubal ligation if your blood goes only a certain way, these doctors are not God and don’t know if every woman is made the same, maybe, just maybe God made us different and every woman will react differently, did they ever think that’s possible, they don’t know how to cure cancer and many other things, the human body is amazing and I wish I would never have done this and would have known, I never would have done this to myself, I was never on BCP’s either, so when they try to tell me that it’s because I was on them, I get SO ticked off and I’m tired of hearing it, I’ve given up on them, my tubal reversal did improve some things, but I think I was soooo bad that even the little bit that I feel better is worth the surgery, if I didn’t get it I think I would have just continued to get worse and worse, I will never trust a doctor again and will do my research before they ever open me up again. They’re not God and they need to stop playing God.
October 27, 2008 at 2:56 pm
Oh and by the way, I love when my doctors tell me that I had the tubal reveral because I wanted to get pregnant again, it’s funny, I had it and don’t want to get pregnant again! Losers, that’s all they are!!!! Losers that are allowed to cut and lie!!
October 28, 2008 at 8:19 pm
Mary… what symptoms of yours have improved? Was your memory affected? And if so, did it improve after your reversal? I hear your pain for sure and I’ve no interest in speaking with my doctor about this… after my c-section, they also sent me home with a staph infection in my incision… and when I went back in to have them look at it… of course, there was “no way I got it at the hospital!” According to them, I didn’t clean my house good enough. That was their standard line and they wouldn’t hear of it otherwise. Forget that I’m also a little bit OCD and wash my hands constantly… etc… my husband has finally gotten used to my little quirks Also, I used to be a nurse… I know all about nosocomial infections. But I’m getting side-tracked…
I was floored because it seems my memory has been affected the worse. The physical pain, period weirdness, etc. I can deal with… but I can’t remember anything! And the mood swings… good golly miss molly…
I went to Google books and read a partial of the book by Susan Bucher… anyway, one of the things it said was that it can cause a women to enter a pre-alzheimers condition basically because it impairs brain function due to hormone deficiency. (OMG, I’m only 36… and I might be developing an alzheimers state of mind?!) Mind you I’m not necessarily endorsing her book… it does not recommend a tubal reversal as an answer… it really isn’t going to help those of us who have already been medically altered. Seems to me that she’s most interested in preventing more women from making this dreadful decision… and total kudos for that! It just doesn’t help me. It also talked about FRS (female reconstructive surgery) to address a lot more of the physical symptoms. And boy if I could afford that… where do I sign up?!
Has anyone else read this book?
I really need some answers from the women suffering with this syndrome. If you get a chance, please go to my site http://www.ptlsrelief.org
November 1, 2008 at 1:07 pm
When I last saw my doctor my hormone test results were inconclusive; how do you test for PTLS? I told her my crashing fatigue was related to my menstrual cycle so she agreed at least that my fatigue could have a hormonal element; so she put me on the pill. I’m not sure it’s the pill but since I’ve been taking it, my fatigue gets me down more than it used to. I feel like I cannot go on living with this fatigue.. it has ruined my life.
November 8, 2008 at 2:50 pm
Hi Christi,
My memory actually is really, really bad, that has not improved, actually has gotten sooooo bad that I thought I was losing it, I was NEVER like this until my tubal ligation, the brain fog is horrible.
The things that did improve were my blood pressure, the moment they closed me up after my TL it went from 120/70 to 160/110, my husband says that was the first thing to go and the first thing to get better from TL to TR. After my TR it went down to 120/80, my ear were ringing when I had the TL, never in my life did I have that. Panic attacks were insane, I had them everyday non stop, I would freakout like someone closed me in a closet, I haven’t had not ONE panick attack since my tubal reversal, it all stopped, from everyday all day every second of the day to nothing at all.
I would throw up like I was dying and got the runs sooo bad I thought I was dying, no joke, my husband never saw me soooo bad before, it was every single time I would ovulate, 14 days later I would get my period and new what was going on. Haven’t had that after I got my tubal reversal either. I have body hair loss, I don’t shave anymore, I used to shave ALL the time, now never, that’s just wrong! Legs under arms have nothing
I had one doctor tell me this is great and I should be happy, they’re insane!!! I have fluid under my coldasac now still and cysts that are still insane and no doctor can explain why, I’ll tell them why…because of my tubal ligation, when they tell me that all tests were coming back normal I was like…you guys have lost it, my hormones were soooo bad and low that I’m now in menopause, the blood doesn’t still no were to go, my tubal reversal may have helped me some, but I had it so bad that I guess it wasn’t all going to improve, though I’m very happy I did it. I have so many other symptoms, but I don’t think I can write it all down, you’ll think I’ve lost it LOL
November 8, 2008 at 2:58 pm
OH, don’t let any doctor take all different tests on you and then tell you after you’re low on hormones like they did to me that they can’t find anything, it’s the hormones and the blood flow that’s affected and this is what causes all these symptoms, it’s almost like a hysterectomy, look on hystercysters.com and I will guarantee you that you will find almost EVERY SINGLE thing that you’re suffering from the tubal ligation that you’ve had done on there! The blood flow is cut off from the ovaries the same as if someone has had their uterus removed or their ovaries, they’re not working anymore and this is where the problems come in. Our bodies are messed up the same as it is with a hysterectomy and don’t let anyone tell you different!!! They’re not looking for a broken arm or pimple on your butt, it is what it is, it’s hormones that are making these symptoms, and they can be VERY bad!!!
I was NEVER on BCP’s and when doctors tell me it’s because I was before my tubal ligation, I can’t tell you how I go at them about this. They’re liars and they’re covering themselves.
November 9, 2008 at 4:20 am
I got a tubal ligation in April 2002. By the end of May the same year I was changing. My hair started falling out and I had crashing fatigue. I am not the same person. I run from doctor to doctor trying to find the one that can fix my problems and all that I hear is, tubal ligations don’t cause problems. I used to be energetic, happy and full of life. Now all that I want to do is come home and lie on the couch. I don’t look the same. My body shape changed and my hair fell out. My hands and arms now have age spots all over them. I am a mean person inside now from PMS. I don’t know what to do. If anyone thinks I should either be on hormones or have a TR please let me know.
November 9, 2008 at 5:51 pm
Hey Mary…
How long was it from the time you got the TL to the TR? You might’ve said in an earlier post… can’t remember… brain fog is right! My body has been so screwed up these past 18 months… and before I started researching my symptoms, my gut was telling me I was in early menopause. I’m the kinda person that’s a “Ms. fix-it” and also of the mindset that “for every action an opposite and equal reaction” so I started just thinking back to when my symptoms started and so on… and it all pointed back to my TL/3rd c-section. I really want a TR before much more time passes and before I lose all of the hair on my head!!!!!
And I would love to be a fly on the wall when you go after the Docs! I actually haven’t gone to my doctor about it. They don’t take me seriously with any of my complaints…
I still need folks to come to my site http://www.ptlsrelief.org
I’m trying to come up with fund-raising ideas to pay for a TR for myself… and then help other low-income women in a similar boat.
November 10, 2008 at 12:12 pm
Hi Chrisi,
It was 4 months after my tubal ligation that I got my tubal reversal, yes…that’s right, only 4 months, everything hit me like a TON of bricks after my tubal ligation I KNEW that’s what my problem was, never in my life did I have any problems, then I got my TL and all heck broke lose. I was living in hell, seriously, I never went through something SO horrible and I’ve been through a lot in my life time. Right after my tubal reversal, I mean right away things started improving, started with my blood pressure started to come back down from 160/110 to 120/80 tell me that’s not a sign if ya ever saw one, that was the first thing to go too. I now would say I have about 10 symptoms maybe, I haven’t been to the doctors in awhile because I’ve given up on them, I’m tired of them turning there back to me and laughing in my face, that definitely doesn’t help any and I’m finished with them, actually lost all respect for them, so I don’t know if I still have fluid under my coldasac (uterus) or if I still have cysts on my ovaries, I did gain a lot of weight and haven’t had that come off, I bloat up SOOO badly that I actually look like I’m 6 months pregnant, then it goes away once I get my period still. I would say the tubal reversal was the best thing I ever did, even though I still have symptoms, I think if I didn’t get it done things would have gotten worse. I have to deal with what I have and I’m trying to do my best. Though it’s weird, I feel disconnected with myself still, I don’t think I can explain it, if you’re going through PTLS you may know what I’m talking about though, I miss the feeling of “ME”
I hope you’ll be able to get your TR and that things get better, I hope this is stopped oneday and or doctors are demanded to tell their patients of the side effects, I really do.
November 10, 2008 at 12:19 pm
OH, and the wrinkles that I got on my hands are insane. So I would say out of the 35 symptoms, I only have about 10 the more I think about it. I still can’t focus too when I get my period, I think that’s the worst part now out of the month. I used to suffer 3 weeks out of the month, now it’s down some. I’m a happier person now too, if you can get a TR, I promise you will be happier if it’s the TL that’s doing all this to you, some if not most of your symptoms will go away after it, and you can’t tell a doctor this too because they don’t believe in a PTLS to begin with. We can only go other womans experiances and we know this is a real syndrome because we’re all suffering the same symptoms to a “T”
November 11, 2008 at 7:10 am
Wow Mary… only 4 months. I really think that breastfeeding my daughter is the only thing keeping me from going to the point of no return. I’m scared to death to stop breastfeeding her and she turned 18 months a couple of days ago – it’s time.
I definitely know what you mean about disconnected with self… I went to Starbucks with my husband the other night (w/o the kiddies) and that was the first time in a very long time that we have done that. I shouldv’e been thrilled, just to get away from mommyhood for a fleeting moment… but I just sat there… my husband was trying to get me to talk, enjoy the atmosphere, etc… but I just sat there like a lump on a log and I told him that it “just didn’t mean anything”. He wanted me to explain that statement and I couldn’t… What even makes me sadder is that I should be enjoying my children while they are so little… instead of battling PTLS symptoms.
I’ve been wondering how far tubal.org/Susan Bucher has gotten in her fight… and since women get sterilized every day with little to no warning of these potential side-effects… I’d venture to say “not very far.” I need to send her an email! I guess for things to really change… they need a celebrity to take up the cause! Do you know of any that had a TL?
I’m glad to hear that things are somewhat better for you. I’m trying to come up with a plan for getting $ for a TR. It’s just a bad time financially for everyone… so it may be a long time… boo hoo. But being able to talk about it and knowing I’m not going crazy and that I’m not alone is certainly helping me cope.
November 12, 2008 at 5:12 am
hi there,
i am a 27 yr old mother of 3 that had a tl just over 2 years ago. After reading about the symptoms, (90 per cent of which i suffer from) i have decided that i am going to investigate further into the costs involved in getting a reversal.
I have been for ultrasound after ultrasound due to the pain that i suffer in my abdomen. i am sick of my periods coming when they feel like it, and i am sick of not wanting to play with my kids.
As well as this a have a full time job that i cant stand going to anymore, due to the fact that i would prefer to be at home in bed. I am sick and tired of feeling like this and didn’t know why until tonite.
I am glad that i am not alone in this and now realise that i am not a freak. NO ONE told me about these types of symptoms when i considered gettng it done and had i known all this b4 hand i would never have even considered doing it.
I HATE BEING LIKE THIS!!!!!!
Thankyou for sharing your experience and i hope that every woman that reads this will understand that it is not in your head, it is definately a disease that medical professionals should provide treatment for.
Thanks Heaps for all your support and i will keep you updated.
Kate (AUSTRALIA)
November 12, 2008 at 3:05 pm
Chrisi,
I sooo know what you mean, I don’t know of anyone that’s had a TL, I really wish I knew of some famous people that have so to get the word out there, it’s the worst feeling and wouldn’t wish this on my worst enemy.
I hope and pray you can get the money up, I really, really do. I feel when I had my kids too I didn’t enjoy them being babies either, it was stolen from me, taken right from my hands, only now, two years later and I’m feeling okay.
If you ever find out anything if you write in to her, please let me know…I don’t think anything has moved because like you said, I would think women would start to be informed and it would be on every TV chanel or radio station, but it’s not…it’s still being covered up, too much of a money maker for these doctors to give it up and let the cat out of the bag.
November 13, 2008 at 2:18 pm
Hi
Reading this gives me a glimmer of some hope. I am a 34 yr old mother of two. I had my tubes tied after my second son, second C Section and it was also one of the worst mistakes I have made. I am miserable for about a week to ten days before my cycle, which lasts 12 to 14 days. I have very heavy clotting and bleeding and cramps that knock me down for days. I have awful mood swings and feel as though I’m totally alone in this … or I just feel like a complete wreck!
I hate feeling tired all the time or down all the time. I tell my husband that “this isn’t me… I’m not me anymore!!!” at least once a month. I suffer from 85% of those symptoms…. and I try not to let it, but it seems to run my life. The one thing that I can take from this is some peace knowing that there are others, like yourself, who know how I feel and that I am not alone in this. Thank you for sharing…
Mandra
November 13, 2008 at 7:57 pm
Hi Mary, Mandra, Kate, Tammy and all the rest…
Mary, It’s been one of those gloomy gus days. I feel compelled to keep researching PTLS… and what I keep finding is making me so depressed. Yesterday, I actually went and purchased ($5) my surgical notes from my c-sec/btl. What a waste of $5 for starters… they told me the same thing over the phone when I called. It was a BTL with Filshie clips. So, I researched that and found out that if you had to have it done… then at least it’s kinda the lesser of some evils… if you know what mean. It doesn’t destroy as much as your tubes as the older methods they formally used and the reversal rate is fairly good (at least according to tubal-reversal.net’s site). Still don’t have funds to get it reversed… so moot point for me. And today, I went back to Google Books and searched for any other books relating to PTLS…. and found one called “It’s My Ovaries, Stupid!” Have you read any of the limited preview of it? When you get a chance, read page 176… I am sickened! You are right. It’s a huge cover-up… they’ve known about the side-effects for over 50 years and women are still given absolutely no warning of “potential” side-effects… at least I wasn’t! I probably won’t write to Susan Bucher… I went back to her site to get the email addy… but I really just get the feeling she just wants to sell her book. I went to Amazon to see how much her book was there… but it had a bad review. The reviewer said that there were so many typos it was detracting from her message… so I dunno! Doesn’t seem the Women’s Coalition is making in more progress in their cause than I’m having in drawing folks to my site. Albeit, my site is just getting started… but maybe this is just too big… too many people (powerful people) don’t want this getting out. Sorry… I’m very sad tonight.
To Mandra & Kate… we know what you are going through. And if you’re anything like me, you will have good days and bad days. It is reassuring to know that we are not in this alone…
To Tammy… Only you can choose your method of treatment. Just keep doing your research so that you can make the best decision possible for your situation.
Good night to all. Maybe tomorrow will be better.
My site: (http://www.ptlsrelief.org) I could use your input!
November 14, 2008 at 11:58 am
Dawn??? Are you still around? I found your other site (ptls.lefora.com), I actually found it right after I created my site (ptlsrelief.org), but didn’t realize it was yours until last night. Seems you & I think alike… looks like we’re getting the same response… although a few did join yours. Did you ever get the TR? I found myself searching through your blog looking… but can’t remember if I found it or not. Please advise.
Hey Mary… how about we write a book??? We can call it “Cut and Lie…” LOL. I am only half-joking
November 14, 2008 at 8:57 pm
Chrisi,
LOL, I would love to write a book, I don’t think I’ve gone through something soooo horrible in my life and I’ve been through a lot. Susan Bucher I’m angry at because she’s giving women like us a bad name and is a nasty woman that only cares about herself, I’ve spoken to her on the phone and she’s not nice at all, I’m from New York and I’ve met some not so nice people in my life, but she takes the cake for sure! I’ve read on other sites that she’s not doing anything and because of the kind of person she is and the lies she’s about and has been caught in and everything she stands for gives puts us two steps back thanks to her, sorry to talk mean about her, but I’m tired of this not getting out because of people like her and doctors not listening to us, this can and should be warned and it’s just not, instead we’re told it’s in our heads and our families have to suffer with us because of one surgery that they say does nothing and is a lie thru and thru.
LOL at “Cut and Lie” hehehehe
I’m praying for you that you can get a TR soon, I really am ((((HUGS))))
I had my tubes, burnt and cut But thank God they were able to put them back and that I had enough, I don’t know how much worse I would be if I didn’t get mine reversed, I can tell you I was not just bad, but absolutely insanely sick!!!! Does that make sense LOL
November 15, 2008 at 2:33 pm
Mary… you’re from NY… I love New Yorkers! You guys always crack me up!
The “Cut and Lie”… was actually your idea, remember… that was how you ended one of your earlier posts… I just think it would be an excellent book title
Do you remember any of those sites talking about Susan Bucher? I searched briefly last night… but really didn’t find anything.
And yes, I know what you mean about insanely sick… I feel the same way a majority of the month. This is my PMS week… so MS. HYDE has been rearing her ugly face a lot the last couple of days… I hate myself when it happens
I need you to come to my site and share your story… I love New Yorkers’ humor… and you don’t mince words… you say it like it is and it is important for other women to hear that… know what I mean?
http://www.ptlsrelief.org
or emailto:christi@ptlsrelief.org
November 16, 2008 at 3:41 pm
Hey Christi,
I’m going to go on your site tomorrow hopefully at my parents house, my home computer has been acting up, I just wrote you on here and lost my post
I can’t remember what sites I saw her on there where someone was talking bad about her. At first I didn’t believe them, but called and first spoke with Susan’s assistant, she was sooo nasty too, I actually hung up on her, I told her I had enough I was dealing with, without having her attitude problem. The next day Susan called me, not sure if her assistant told her to, but she was just as nasty as the assistant, I told Susan before hanging up on her to please throw out my number and never call me again, they both had the attitude of “We’re at they’re mercy” kinda of thing. One month later I got my tubal reversal and things got better.
If anything good came out of this, I’m a stronger person than I realised that’s for sure, and I will never believe doctors again, I will research surgeries before I ever have anytone cut me open again. They’re not God and they will NEVER know everything about the human body and that’s a fact, God is the only one that does!
Don’t let any doctor tell you that this is in your head, it’s real and there are way, way too many woman suffering from the same exact symptoms for it to not be real, we know our bodies better than anyone.
((((HUGS))))
You made me laugh when you said you like us New Yorkers. Where are you from?
November 17, 2008 at 3:05 am
I am literally feeling sick after reading these responses. I know that I am not going through with this procedure, I thank you all for sharing your story.
November 18, 2008 at 8:41 am
Hey Mary… I’m from Arkansas. My husband is originally from NJ… by way of Florida. I used to have an email buddy that was from Staten Island, NY… but I’ve lost touch with her over the years. She was so funny… I miss her.
When I get a chance today… I’m gonna search for any info I can find on Bucher and Hufnagel… curious as to which states have laws where women do have to give “informed consent” for TL’s. I want to post this on my site… http://www.ptlsrelief.org
And very sorry to hear she was so nasty to you on the phone… there’s no reason for that no matter what the circumstances…
To Jess: glad our misfortune was able to help you make a better decision… now please help us get the word out! We would surely appreciate it!!!!
To everyone: I’m considering getting some banners made up… mainly to draw people to my site… does anyone have good locations to display them? If so, I can get as many as I need made up (of course, as I get the funds to do so). We have a local area here where people have banners displaying their commercial sites, etc… so I’m going to inquire if I can hang a banner there as well. Please advise. Thanks. I will also discuss this on my PTLS site. http://www.ptlsrelief.org
November 25, 2008 at 1:13 pm
I had a TL 10 years ago. I was only 22 years old. I was convinced that this was the way to go. Since then, I have been suffering and I’m tired of it! I’m just plain tired! I can’t tell you how many times I have had to leave work and change my clothes because my vagina turns into Niagra Falls. This really isn’t a joke! I bleed all the way down to my knees. I’m so embarrased! My periods are always so heavy and painful. I always pass huge blood clots. I wear a combination of super tampons and overnight maxi pads. It still leaks through. I have been tempted to wear Depends underwear! I’m starting to cramp ALL MONTH LONG! I have gained so much weight! I’m always so exhausted! I have constant headaches! I’m angry that doctors and insurance companies do not recognize that this is a problem. I have suffered for years and I had no idea that this wasn’t normal. I can not afford to reverse the damage that has been done to my body! I want this reversed. I wish that I had all these assholes in a room together with every single woman that has been affected by PTLS. If anyone knows a way out, please contact me.
November 25, 2008 at 1:19 pm
Sorry, you can search me out on facebook, my email is drew.kimberly@gmail.com
November 26, 2008 at 7:45 am
Hi Kim, wow that’s rough! I haven’t experiencing the bleeding to that extreme… mine has increased and in gushes (not like that pre-TL)… but not as bad as yours! Have you seen your OB/GYN about this? Just curios. I checked your facebook profile and did a search for fertility specialists in your area and several came up… I would call and see if any one of them dealt with women suffering from PTLS. I called a place locally during my initial investigations… they were snotty when I mentioned PTLS… so won’t be going to them! But then I called the clinic in NC and they were very helpful and appeared to understand PTLS… and are willing to treat women who don’t necessarily want another pregnancy, but who are simply trying to relieve symptoms of PTLS. Calling them doesn’t cost anything and you can tell by their attitude if they will be sympathetic or not. Plus, they may have different payment options… all of their options did not help me, but you may have different $ circumstances than me. Bottom line is that you have to be your own advocate and only you know how far you are willing to go to find relief. I hope this helps some… you can also visit my site http://www.ptlsrelief.org
November 26, 2008 at 8:48 pm
Sorry, had baby girl on lap when I replied… *haven’t experienced…
December 1, 2008 at 9:11 pm
I had a tubal ligation done about 10 years….and wondering if anyone out there might be experiencing what I am today. While I have experienced many of the ill side effects post tubal procedure…..the one that is most frightening is what I am going through today. I had a tubal ligation done just under the navel. Today, it appears that the wound never healed. I don’t rightfully know if it is scar tissue. Certainly I have not done a thing to injure myself in that area….i have not gained any weight…but the area had opened up resulting in puss like excess seeping out and causing a really bad odor…not to mention, it hurts like heck. can anyone relate or possible tell me anything about what i am experiencing? desparate for an answer.
December 2, 2008 at 9:50 am
I SOOO agree with Christi, get to a doctor ASAP!!!!!!!!!!!!! Please!!!!!!!
December 2, 2008 at 9:54 am
I said the same thing Christi. I actually emailed her at the address she left and told her it sounds like a bad infection. The only way to clear that up is for her to go see her Doctor and get some Antibiotics.
I had the same symptoms as her right after I left the hospital after my C. Section and tubal and the midwife told me it was an infection. It took a while to clear up because some antibiotics didn’t work. It took 4 different courses before they found one that cleared it up.
December 3, 2008 at 10:48 am
Yep, Mary, Dawn… I was a nurse in my life before babies. Not to mention after my last C-sec, I had an awful infection… took awhile to heal… even w/ sulfer meds… the reason antibiotics don’t work… because these infections are staph (AKA MRSA) or a strain thereof and they are antibiotic resistant.
What concerns me as well is that there is a flesh-eating bacteria… and you lose permanently what flesh it destroys and it does not waste any time! It will KILL you. I watch “Mystery Diagnosis” too much!
And while nothing about PTLS is “normal” either… there are some things you cannot deal with for one single solitary second!
Sorry for the rant… haven’t talked or vented in a while… need to get writing more on my site. My 3 y/o & 4 y/o have taken over the computer… won’t let me on much anymore… boo hoo.
December 3, 2008 at 10:52 am
Hey Dawn… I sent you a couple of emails but haven’t heard back. Thought maybe they got spammed. Can you email me at christi@ptlsrelief.org… so I can make sure I have the right email addy for you? Thanks.
December 4, 2008 at 8:01 pm
Hi! Thank you so much for sharing your story, I only wish I head read it 2 years ago…. While having a c-sec with my 3rd kid I also had my tubes clamped, and since then I’m expreriencing about 75% of the symptoms you list… No one ever mentionned anything to me about complications, it was discussed with me for about 1 minute before I went under… Having a reversal seems such a hassle now and who knows how much longer it will take for things to go back to normal…. I just wish the whole thing was over with!!!
Thank you…at least I’m not the only one out there!!!!!
December 17, 2008 at 10:59 pm
I am a young 23 year old mother of 2 boys.. With my second son almost 3 years ago now i had a TL and have been in constant pain ever since.. My doctor never told me any side effects other then it’s permanent.. No counselling or anything was ever offered.. I once had to be taken into emergency cause the pain and bleeding and clotting was so bad.. Something needs to be done to stop this from happening to other people.. I suffer from just about everything on that list and I thought that you can’t get a TL when you are only 21 years old? I think if everyone pulls together and brings this to the table at once, something may be able to be done.. Maybe I should make a print out of this story and everyones comments to my doctor and tell him I am not the only one and it is not in my head.. How much is a tubal reversal anyways..?
December 18, 2008 at 10:13 am
Hi Tammy, I am sorry to hear the problems w/ PTLS you’re having… you are not alone. The tubal reversal cost varies depending on where you live, what clinic you choose, etc. Anywhere from $2500-$15,000… is what I have found from my research. I would love to put an end to this happening to others… but unfortunately it’s been going on for over 50 years and not likely to stop. I started my own site, trying to find relief for myself and others… but lack of support will be its’ downfall. As has been the case with all other sites relating to PTLS. I am still trying and could always use comments and/or suggestions as to fund-raising ideas… http://www.ptlsrelief.org
Anyway, best wishes to you… and if you would like a list of sites I have found relating to PTLS… I would be happy to email them to you or to anyone else wanting them… mailto:christi@ptlsrelief.org
Dawn: hope you are feeling better!
December 19, 2008 at 8:21 pm
Just like a lot of others started their posts, I finally don’t think I am going crazy anymore!! After looking at the list of symptoms i realised I could say yes to 24 of them! I had my tl Feb 2007 after the death of my youngest son. Like most others on here I wasn’t given any type of counceling and got nothing more from my dr then “you should do this its the best to stop pregancy”. I have never been a fan of doctors due to growing up with my grandparents and their health issues but now I can honestly say I hate them. My heart goes out to all the others that are dealing with ptls. I am a 23 yr old stay at home mom trying to raise a 4,3, and 2 yr old wile dealing with this and so far all I have been told is its depression and the stress in your life. Finally I started looking on my own and found all of this. I’m going to start looking in to other doctors in my area (pittsburgh pa) and hopefully I find a smart one soon. I wish all the luck to all of you ladies with this and i welcome any emails from anyone about websites on ptls and anything we can do to get the drs to listen! Lilethsmommy@yahoo.com
January 14, 2009 at 11:55 pm
Hello! I had my TL done almost 5 years ago. I didn’t know that all my syptoms had anything to do with my tubal. I have seen so many differnent doctors for each symptom, not knowing that they were connected in any way.
My life as well as my families life has been torn apart by this. All this time I thought it was me. I kept asking myself why me? Why can’t I be normal or what happened to the person I used to be?
For me, the depression and mood swings are the worst. I don’t know this person who doesn’t want to be apart of life anymore. I’ve tried meds, but it made it worse. My doc keeps telling me that it is stress, but now, sfter reading this , I know what it is.
I have lost my 2 children and my husband over this. I can’t wait to get a reversal so I can try and get my life back. Thank you so much for what your doing. It’s people like you that give others hope. YOur a very special person.
God Bless you!
January 16, 2009 at 12:24 am
I had no idea this was real. I thought I was just crazy.
I had a tubal when I was 19 after only one child and suffered ever since. I turned into a hairy basket case with only one good week a month. I am having a reversal in Mexico next week and I hope to maybe get normal as well as become a mom again. If it works my two kids will be nineteen years apart. I now tell everyone that even mentions a tubal to think twice.
January 16, 2009 at 8:59 am
im 40 from colorado, and had a tl almost 2 yrs ago. I have almost all the symptoms and am just so–glad to know what is wrong! Im tired of the pills and being treated like a nut! Where can i find a clinic that can reverse my around me?
January 16, 2009 at 11:22 am
Hi, I came across all this looking for something else but I guess this is a sign because I had my TL in 2002 aftr the birthof my son I taught that I was done but for the last three years we would like to have one more child but it cost alot so after reading all your information on the symptoms I don’t feel CRAZY! anymore 90% of eveyone symptoms I have but like the rest my doctor after all the test said their is’t anything wrong and ask if I wanted to take birth controll I refused and left thing I have to be going crazy. Now I going threw alot of allergies and allergic reactions from out of the blue YES that is crazy I know I don’t blame my TL but maybe ther is a conection…..P.S. the nite sweats are horrible………
January 16, 2009 at 11:04 pm
I am so glad I have found this site . I too like everyone else had a TL when i was just 25 , I had 3 kids and my husband didn’t want the 3rd so I thought this was the best thing to do – now I wish someone would have just told me more about it – I was never offered counseling or anything either just told it was the best birth control – I love all 3 of my boys and wouldn’t change any thing about them but I have always longed to have a little girl , I was researching how to get it reversed when I came across this site and OMG — if only my husband could have read this and realized I wasn’t crazy like the dr’s acted maybe i would still be married today – but he thought it was all in my head as well— Depression, heavy bleeding, horrible cramps and headaches, clots all the time, and the worst of all was the tender breasts and pain during intercourse,and the incontinence :when sneezing, coughing etc.
I would just like to thank everyone who has posted – because now I don’t feel so alone— could someone please email me the best places / cheapest places to have a reverse done? THANK YOU ALL AGAIN!!!!!
Julia nunyaluv25@aol.com
January 17, 2009 at 1:59 pm
Julia, I checked with several doctors in my area and found the fee around 5 to 6 thousand for the doctors fee alone and the hospital with anistestiologist was fifteen to thirty. So I made a appointment with Dr Perez at RioBravo reversals.
The cost is 2600ish and they have a shuttle that is picking me up from the airport and dropping me back to the us when I am released. Total cost for it is less than 4000.00
plane fare included! My surgey is shedualed in two weeks.
I will post an update after I get back to the US as to how it went.
January 28, 2009 at 8:19 am
I agree i MA going to my dr today i am only 30 and had my tubes done early at 22 years of age..I ma now having all these symptoms almost all…been to the dr for years and been almost deemed crazy when they could not find anything wrong……I began studying my symptoms and relized that this is my problem..it explains every single symptom that can easily be discarded as thyroid,muscle problems and much more but that is always ruled out as those problems….
January 29, 2009 at 7:04 am
I talked to my husband about Dr.Perez….Hes so worried…crossing border…But thats the only way i can see myself affording a TR. If anyone has been there please tell about your experiance!!!!! THANX TO ALL!!! WE DO HAVE HOPE!!
January 29, 2009 at 5:12 pm
Im flying out to McAllen at 8 in the morning where I will be picked up by Marcos the shuttle driver. Right to the hospital in RioBravo. No driving across. I drove across the border and all the way to Puerto Penasco last year.I think it added ten years on to me. I will never drive in Mexico again. It is simular to downtown Chicago or bumper cars at the fair.
So your hubby is right on that account but you could drive to Mcallen and Marcos could come and get you and after the surgery bring you back. He would even take you right to a hotel for holiday after. There is nothing like recouperation in the sun.
January 29, 2009 at 6:15 pm
Well I Went to my doctor and he treated me like this was not even possible.I do not know what else to do once again I am being sent to dr’s fro more and more blood results and tests.I was also put on meds for anxiety and much more I just do not know what to do now ..I cannot afford to just go and have my tubes reversed to stop it all on my own…and I cant even get anywhere to find out if my insurance would cover it because I cannot get a dr to listen to me…they keep saying that its not possible and there is either no such thing or whatever
February 2, 2009 at 7:11 am
Jenena- We are all awaiting your return… I truely hope for your sake (and OURS) all went well!!! Please update us when you are able!! Did your husband go with you? Do you need a passport? THANX
February 2, 2009 at 3:26 pm
Yes Becky I am back and I have to say I was very impressed. I found out that I had a reaction to the hulka clips that were used for my TL and resulted in me being left with 4 th 5 cm on each side due to the scar tissue. Dr.Levi Diez said I have a excelent chance at concieving again though. The surgery was a piece of cake. He was worth evey penny and then some. I felt nothing and was treated very well. Once again don’t drive yourself down. I was picked up right from the airport and driven across by Dr levis father in law. McAllen had alot of nice hotels to stay at and cheap too. My hubby was there with me the whole time. He was talking to the doc and even took pictures during surgery. As of June you will need a passport. You might even get asked many questions at the border like we were. I felt like such an idiot when asked what the name of out national anthom was. There were four americans and nobody could remember!! Duhh. They always say stand for the national anthom at sport events and three out of four people get the words wrong anyways, they don’t say stand for the star spangled banner.I still feel like a looser though. I now am resting and am a bit queezy back here in Illinois. I go to get my stitches out here in ten days and can start TTC in two months.
February 6, 2009 at 4:51 pm
I must agree, this PTLS is os real. I am 34 and had a TL done 4 years ago after the birth of my daughter. Just recently in the past 5 months I have started experincing these symptoms, but now that I think about it, they started a copule of years ago and have gotten progressively worse. I feel either anxious or depressed most of the time. My periods are irregular, light, heavy and change cycles every couple of months. I have abdominal cramping, Hot flashes that stay around for periods of time. I am mean as hell. I am so glad to know there is a support system available. Being able to talk about it really helps. Those people that don’t believe I’m having hormonal problems oh well, I know my body and after reading the entries this is real!!!! Thank you all so much you have really helped someone that was very confused.
February 7, 2009 at 2:43 pm
Jenena – did you have vaginal birth(s) or C-section(s)? I wondered about the clinic in Rio Bravo… their site says it may cost more for patients who have had C-secs… I wonder what the price difference is… hmmm.
And congrats… hope it works out well for you!
February 7, 2009 at 10:30 pm
I had one c section. I was charged a total of 2965. I didn’t smoke, was within the weight and health criteria no high blood pressure and all around good health. The reason I was charged extra was that I am alergic to sulfa and that meant they had to change all the medication. The pricw was still three grand less there than the doctors fee here.
They were very good and extreamly informative. Dr.Levi was awsome. I will say that for patients who are in poor health and smoke the price could be higher. Dr.Levi will actually be able to give a quote if you call him.
February 7, 2009 at 10:32 pm
P.S.
I forgot to add that I also had my gallbladder removed and the tubal also. There was a good possibility I was going to have scar tissue.
February 8, 2009 at 11:37 am
Jenena, Ok thanks… I’ll give him a call… soon I hope.
And to everyone else… I’m still around and posting on my site http://www.ptlsrelief.org I’m thinking about making it WordPress as well… so it will be easier for everyone to make comments, etc… does that sound like a good idea?
-Just one voice here… but together we can make a difference!
February 10, 2009 at 9:06 am
Well Congratulations! Jenena I am so happy for you ! I hope that in a couple of monthes you’ll tell us your expecting…..well here waiting to go to my yearly exam hoping that everything is good, I spoke to my husband about Rio Bravo but he said it’s to far so I have found a doctor also in Mexico but Hermosillo Sonora for about the same amount but since at this time money is kinda short I might have to wait and I belive that all Doc. charge for being over wieght so when I found out about the weight issue Sept. of 08 I started to loose weight so far so good….Ladies another thing about doing the TLR at this time your dollar is worth more at this time in Mexico due to the economic problems so if it’s in your reach take advantage of $$$$$$$$ value being in a high at this time. talk later………yes everthing is still the same as far as symptoms exept this month I have added drowing-up to my menstrual cycle………GREAT……….talk later…
February 11, 2009 at 10:15 pm
Hello!
Wow, this is quite scary. I am sorry for all of you ladies who have experienced such hardship.
What is the percentage of women who experience this syndrome? Does anyone have any idea? If you have a bad reaction to BC, are you more likely to get it?
I have three doctors and two nurses in my family and I do not think that medical professionals are so negligent to ignore a syndrome if it happens to *everyone*. However, they are dependent on studies and whatnot for their information and studies are not always right or up to date. It takes a while to prove things, I guess. It seems to me that this is a real thing. Since this is a site for people who have the syndrome, it probably reflects a higher number of sufferers than the general population (or women w/tl), so I am wondering if there are any statistics on how often this happens. I have serious medical reasons not to get pregnant and other forms of birth control have not worked at all and caused horrible problems.
Oh, and those people who were diagnosed bipolar (and manic depression–same thing): true bipolar disorder is a psychotic disorder. Mania is often mistaken for schizophrenia. It is not just mood swings, even extreme mood swings. I am bipolar, as are many family members, and full blown mania (a torturous thing) involves losing touch with reality. I mean, really–I hallucinated, stopped eating because I though I could live off my “energy” (lol), became incoherant, that sort of thing. The fact that medications did not help in itself does not mean you don’t have bipolar–there are a lot of drug-resistant people out there. And there is also bipolar II, which is less serious and does not involve psychosis, but needs medication (I am not trying to downplay the pain of people who have it–depression in itself is very miserable.) I am NOT telling anyone to take or quit their medicine or that they do or do not have bipolar disorder–I am just saying that the listed symptoms do not cover all of the symptoms of manic depression. And you could have both this syndrome and bipolar. So that is just something to think about.
February 15, 2009 at 2:01 pm
i had tubal in 1980- almost 30 yrs ago,imediatly after the tubal i fell into a deep deppression, had a nervous breakdown, im now 50 going thru bad bad menopause – i will pray that none of you have it this bad , but i know you guys are out there some where !!
March 1, 2009 at 7:53 am
I gave birth to my third child, a girl, in March of 2004. Minutes after the delivery I was taken to another room where my OB performed the Tubal Ligation I had requested. My husband and I thought it was the very best thing for all of us. Little did I know that that day was the beginning of the end of my life as I knew it.
In May of 2004 I began experiencing bizarre sx (symptoms) such as muscle twitching, pain, electrical shock sensations, muscle cramping, numbness, etc.
During the last 4+ years I have seen more than my fair share of doctors, most of them neurologists, to no avail. I have been tested for everything under the sun including MS, Lupus, Celiac Disease and many more.
To this day, the only diagnosis that has been made is Fibromyalgia (a very severe case) and osteoarthritis of the spine from cervical to lumbar.
While these diseases may account for a few of my sx, they do not account for all of them. I have been called “an enigma”, “puzzle”, “mystery” and “unusual case” by many of my doctors. None of them know for sure what is wrong with me.
I am living a life on pain killers and muscle relaxers. The pain is so intense at times that I can barely move. I am no longer able to be as active as I once was. My children suffer as much as I do from my condition(s).
It’s been almost two years since my husband and I were intimate due to my lack of sex drive (yes, I am repulsed by the very thought of it). He has been very supportive of me and my quest for answers. But, I can’t help feeling guilty for not being the wife he deserves.
In the last few months things seem to have escalated for me. My depression has increased to the point where I honestly believe that my family would better off without me and my miserable existence.
And then….
Last night I did some reading and found another site on PTLS. I was stunned at the list of sx! I have at least 97% of those sx! This all makes sense to me and I feel that finally, we have an answer!
Now, we may just know for sure what is happening to me.
Armed with the information that your site, as well as the others, has provided me, I plan to return, once again, to my doctor. This time, I hope they listen!
It’s been a long, terrible 5 years and it’s time to end it before these sx get the best of me.
I thank all of you so very much for telling your stories. You have most likely saved many women from making this terrible mistake.
No woman should ever have to go through what we have gone through. Not to mention what this does to our families and relationships.
Bless you all!!
March 2, 2009 at 9:04 am
Do you have ANY info about a class action lawsuit being filed about this in the U.S.? If so I want to join the class. Thank you.
March 5, 2009 at 8:13 am
Thank you for this info i have been wondering alot lately why i have been feeling the way i do and now i think i know, i only had my surgery 5 months ago but i am already experiencing alot of these symptoms its not fun at all especially on the days when u have to fight with your body to stay awake even if u slept good the night before!!!
March 8, 2009 at 8:28 pm
I want to do something about this-Does anyone have any ideas? There are so many of us-we have to get together and change things? This surgery cannot continue to be preformed on women-doctors are stealing our lives away from us. I am ready to speak out somehow-I just don’t know where to start?
March 9, 2009 at 8:58 am
Nanda…
It seems to be a daunting task. If you’ve visited tubal.org… then you know that this issue goes back a long way and women have fought to change things (including Dr. Vicki Hufnagel) with limited success. The few doctors who actually believe this is a problem… are the TL reversal docs. I started my site last year (www.ptlsrelief.org), to address issues relating to PTLS… and have gotten little to no support… I get visitors to it every day… but no one wants to actually get involved…
I still suffer every day with PTLS… as does my family.
-Just one voice here.
April 15, 2009 at 4:09 pm
Thank you! Thank you!
I have been dealing with a lot of these symptoms for about 5 years. Every time I go to the doctor I am told that I am just depressed. My marriage broke up and I am now newly married. We are looking onto Tubal reversal because he doesn’t have any children. Now I hope that it will also help me live again. I am so tired sometimes that I can’t function. As a teacher, resting is not an option. I have also gone a couple months with out a period at all, but all the symptoms. Some times my cramps are so bad that I dream I am in labor while asleep.
I was getting so tired of being told that it was all in my head. All of your stories have made me realize that maybe I am not depressed and I am not crazy. Thank you!
April 15, 2009 at 9:37 pm
Hello all…
I just wanted to let everyone know that I am deleting my site… (ptlsrelief.org) someone has decided to spam it with garbage!!! I haven’t the time or energy to fight it any longer.
I wanted to thank everyone who visited and created an account… and if you need any of the information I have collected… just let me know here… as I will periodically check back.
To Dawn… thanks again!
May 1, 2009 at 3:08 am
I gave birth to my 3rd child in August of 2007. Like most of you my doctor asked if I wanted to get my tubes tied. Well, my husband and I both decided that I should as I was 39 and this was a suprise pregnancy. (My youngest at the time was 10) I was having a planned c-section due to the adhesions that were present during my 2nd Pregnancy so my Dr. said he could easily do it then. He ended up removing one of my tubes because he said it looked so bad and he burned the other one. Pathology report on the removed tube showed Endometriosis which relieved us all, Dr. included. Around 1 year after the birth my periods have been weird. I’ve always had very painful periods since I started at 11 years old. Since the surgery, I’ve had less pain than before, but very heavy bleeding. Periods before the surgery were around 5 days, but now always last for 7 to 9 days. No sex drive at all and when I use tampons, I get what can only be described as the ‘mad itch’. The first day or so isn’t so bad, but after that I feel like I’ll go crazy from the itching. I’ve always been mild tempered especially with my husband who had been my best friend in the world since high school, but we’ve had knock down drag out yelling matches occaisionaly that have all been my fault. It’s not often, but it happens. I have several of the other symptoms too, and now I’m having weird right flank side pain that is pretty constant and feels like a bad pulled musle. It sounds like PTLS to me. Doctors haven’t been able to come up with anything except that I’m 41 now and may have perimenopause and endometriosis. Thanks for the site, it helps to know others suffer also.
May 6, 2009 at 5:40 pm
Wow, I was just “urged” into my TL 3 1/2 weeks ago and 3 days in I was feeling that overwhelming sense of regret. I’m sure most of that was hormones. However, feeling that being non-informed about the after affects and making this decision literally on the way into the OR was not in my best interst. My doctor felt very strongly that it shouldn’t be my husband who got his tied that that would be unnessary if I’m already open and on the table. I feel that I made a huge mistake and there is no way I can correct it and not sure if telling my doctor that being uninformed I want this corrected will help. I am not sure what to do or how to handle this at this point.
As crazy as it sounds as soon as I had it done it was like my body began screaming at me that I did something wrong. ahhh, what to do???
May 11, 2009 at 6:14 am
Thank you for this informative site. Please note that I will be saved thanks to all those courageous women who have decided to speak out against TL. I was seeing my Doctor today and scheduling a date to have the TL procedure done but no more. I have been on the pill for a long time and it has never given me a problem, so I will continue this safe route. I am 40 years old with three beautiful wanted children but my sanity is what’s important now. Thanks Girls!
May 11, 2009 at 1:33 pm
It pains me to know how many women are suffering needlessly. I have always had issues with the traditional approach to medicine… PTLS is a prime example of why. I have told my husband in no uncertain terms I WILL NOT EVER have a TL — the risks are just too high.
Thank you, ladies, for sharing your stories and banding together to find a solution.
My highest, most positive thoughts go out to each and every one of you in the process of restoring your health. Peace and blessings to you.
May 13, 2009 at 6:10 am
Hi Everyone,
I was going to get my tubes tied during a laparoscopy surgury i have scheduled for Endometriosis. My doctor seemed so easy going about tying the tubes. I asked him during my last appointment if tying the tubes could be done at the same time as my laparoscopy. I am 44 and happily married with one child. I know I don’t want any more children and won’t for sure in the future. I thought tubal ligation was a simple solution to stop taking birth control pills. I have been on them since I was 26 and didn’t want to have to deal with them anymore. I don’t have any problems, very light periods 3-4 days of very light flow, very little cramping, no mood swings. Wow! After reading all the posts here I am NOT going through with the tubal ligation. I will just keep on birth control pills until I go naturally into menopause in the next 6 or 7 years. I already have mild hot flashes and trouble sleeping so I think I am perimenopause. But to think I could have set into motion something this horrible just because my doctor didn’t give me ANY info about risks of a tubal. I am soooooo glad I decided to google risks of a tubal before going through with the procedure. I was just feeling uncomfortable with having a tubal not knowing all the facts about the procedure so I was sitting here googling info about a tubal. Thanks to everyone here for getting the info out to ladies like me. I think this has stopped me from making a BIG mistake. Now if i could just feel good about having the laparoscopy for the endo diagnosis too. I have misgivings about that surgery too like maybe it isn’t needed and I could just live with my endo.
May 14, 2009 at 3:23 pm
Thank you for all of your posts. I have a planned c-section and what would have included a tubal ligation scheduled for 5 1/2 weeks from now. After finding SO MANY listings on so many blogs and forums on PTLS, my husband and I have decided that his vasectomy is the way to go. Thank you again for sharing and probably saving me a great deal of pain and frustration. Good luck to all of you experiencing these awful symptoms. I hope you get reversals if possible and relief. I don’t care what my doctors will tell me about PTLS being a myth, lots of sufferers convince me.
THank you again.
May 17, 2009 at 6:37 am
Wow! Same as Molly, I am scheduled for a csection in 7 weeks and was considering a TL because I am 39. After reading these posts, I am about 99% sure we will seek a different route for BC. I am just curious if anybody has done research or found a correlation between gals who experience the same after a ruptured tube—it’s got to be similar right? I also read somewhere that there is higher correlation between these symptoms and the age you have the TL done……….gals in their 20’s have more chance of symptoms? I wish you all the best and sorry you are going thru this……..by sharing your stories, you have helped gals like me and Molly eliminate this option. thank you
May 22, 2009 at 4:02 pm
i had my tubal in 1980, that year i suffered severe depression, anxiety, severe anxiety- severe nite sweats, i was never the same !!!
May 29, 2009 at 1:50 am
I had my tubes ties in 2001 after my third child was born. I have had some of the symptoms. Especially the heavy bleeding, but for the most part my symptoms haven’t been too bad. Until now. I turned 40 in December and all hell has broke loose. I am so moody. I have more cramps and backaches. I even seem to retain more water than I used to. I am starting to bleed between periods and after sex. I honestly think having my tubes tied has caused me to go into early menopause. If I had to do it all over again, I would have never had my tubes tied.
June 3, 2009 at 11:41 am
Thanks for the info, i was thinking about getting a tl but after this, dont think so. Thanks this info helped alot.
June 15, 2009 at 7:29 am
Hi, I had my tubal done when I was 22 years old and had only 1 child. I was not offered any kind of counseling. I made a BIG MISTAKE. I want to have a reversal done as soon as possible. Where I live it costs $2500. It might take me 2 years to save but I am willing to do it. I want more children. I was in a bad situation when I was 22 so that is why the doctors did it but they sould have tried to give me some other option. Like say ‘No’ and tell me to wait. The doc said I was his youngest patient, what does that tell you. I was so mad with the doctors for a while but we all make mistakes. I am determined to have a reversal and thats just it. I hope to have it done and be able to have healthy babies. Best of luck to everyone.
June 17, 2009 at 11:05 am
I’d love to know where Tracy lives that the reversal is only $2500?!! It’s $15,000 in my state.
Thank you to the creator of this site.! I’ve been researching post tubal ligation syndrome and reversal doctors for a few years now. I had my child in 2002. A bad marriage led to my decision to get clamps later that year. I felt like a million bucks before having that surgery. My first symptom was the 20 pound weight gain. yippie.
For the next several years, I suffered with every symptom listed, except for the hair loss. Guess what.. I’m 35 years old, relatively healthy and now losing my hair. (it’s not stress, cuz I’m not stressed) I’ve been tested for everything: thyroid, cholesterol, poly-systic ovary syndrome, ultrasounds, bloodwork, on and on… the results = I’m healthy as a horse! The MD’s solutions were: Birth control, another pill, prozac, testosterone cream, more drugs, etc. Nothing worked and I quit everything they gave me within a month and I decided to just live it and try not to off myself.
Question: If the MDs can’t find anything wrong with me, what in the world could be causing these crazy problems? I tried talking to my somewhat ‘holistic’ gyne and she became enranged when I suggested such a thing as PTLS existed. Talked to a nurse at the fertility doctor in town and she about hung up on me when I asked if they’ve heard of it. All of a sudden, I became a horrible stupid woman in their eyes.
I do agree that some of the symptoms present themselves as we age. However – it is NOT coincidental that I’m feeling great one day and feeling like absolute hell immediately following tubal ligation.
I did not know that we are supposed to be counseled beforehand. I was told that “this should be considered permanent” – that’s it. sad.
Of course, I’m now in a very healthy, wonderful marriage and I cannot give him an heir. Anyone who’s reading this… do NOT get your tubes tied unless you want to bleed heavily and often and feel like you’re losing your mind and body.
With pure determination, I finally have some energy to work-out, eat healthier, sleep, and feeling somewhat “normal” again. The periods are still horrendous and I’m still losing hair but I don’t feel SO out of control.
Time to save up $$ and get my womanhood back! xo cj
June 18, 2009 at 12:52 pm
I had a tubal done after my fourth child in 1997.I have had some
of the symptoms listed above. My question is “Has anyones hair
turned gray besides thinning out?”
June 21, 2009 at 12:07 am
okay so i’m amazed at hitting this website.. i have been looking for an answer to my problems for years now.. i got a tubal ligation in 2006 and have had so many problems in constant pain never have a regular cycle always feel like i’m “pregnant” nausea vomiting sore breasts the works.. for the first year i didn’t stop bleeding at all .. then it’s been heavy and it kills me everytime i have seen many dr’s and gone to the ER several times and i’m always told the same thing that there is nothing wrong with me… i do plan on getting a reversal but i’m scared to talk to my dr about it because she keeps insisting i get a historectomy….. but i’m just married and i have two boys with my ex but would like to someday have a child with my husband… but i need all the information i can get on all this because i have searched for so so long for something like this and now i’ve found it i’m tired and emotional and i can’t handle it anymore…. please some advice??? i’m so glad i’m not the only one!!!!!!!
June 22, 2009 at 6:42 pm
Well, I am 27 yrs old. Have had my tubes tied for 2 and a half
years now. I have felt different every since. But until now
I thought were caused by other things.
I have depression, I have Stomach issues which according
to the tummy doc is reflux and gastritis.
I am ALWAYS tired! I have energy or motivation to do anything
And my periods come sometimes twice a mo or to early
and are typically grossly heavy. I have also had to run to
the bathroom to make sure I make it with out a messy cleanup.
More recently, I started early then yesterday I had an EXPLOSION of emmense blood and hugs blood clots , then
came the pain felt like someone was sticking a needle in my
belly buttom and just jabbing over and over again.
I could not walk. I tried to shower . That did not work.
Just more blood. This is the worst it has ever been.
I seriously considered that I was having a mis carriage it
was so bad and the huge clots coming out of me. I was scared
out of my mind! I finally found a obgyn and I am scheduled
for a visit on Wed.
They suggested that If I supescted a miscarriage to take
a pregnacy test to see if the hormone came up on it.
It was a def negative.
It all makes sence now. All of the problems I have had since
this surgery. I want it to go away. I want my life back.
But we def can not afford to have a reversal. But , if that
is the only thing that will make me feel better , then I will
also do everything I can to get my life back to the way it was
before the pregancy.
I thought we made the right decision . We have our two little
boys and we were done . I could never take any type of orals it messed with me to much.
This all makes sense!! And I want a resolution! I hope my new
obgyn listens to me!! Thanks again! You helped me make sense of this mess!
June 22, 2009 at 7:15 pm
I had my tubal reversal with Dr. Monteith and it was great! I feel so much better-everything is much more like the way it used to be-not the same, but all my symptoms have improved and it has only been less then 2 months-I feel like myself again. I found a way to come up with the money-we are struggling financially, but it has been all worth it! Go get the reversal girls with someone who does it daily and has experience. Don’t have expectations-everything may not be the same after the reversal as before tubal ligation, but I do not regret it at all! I am better in so many ways!!!!!!!! Just know that my tubes are working again they way they were suppose to be is a relief and I can sleep better at night. I had BAD post tubal ligation and I am recovering! Good luck.
June 15, 2006 at 4:31 am
Well, we’ve talked about this already babe, and though it’s not an excuse, I’m sure the insurance side of things plays a major role in how it’s viewed and treated currently. Because it’s not a “major” thing in doctor’s eyes, and that certain cuts need to be made in order to keep procedure within operating budgets, PTL is one thing that unfortunately is swept under the carpet. Though there is a problem much bigger than all this.
Health Care should not be treated as a business, but rather as a service to all to not just treat illness, but also to promote healthy lifestyle.